Whereas, The good health and general well-being of the people of Michigan is
strengthened by our knowledge and understanding of birth defects, including
Cornelia de Lange Syndrome (CdLS); and,
Whereas, Children born with CdLS are usually low in birth weight and develop
at a slower rate than other babies, both mentally and physically, and possess
other physical complications; and
Whereas, Although a cause has not yet been discovered, dedicated medical professionals
are presently involved in valuable research and education activities to explore
new possibilities and to offer help; and,
Whereas, A leading advocate and active voice in offering parental and family
support while increasing public awareness about CdLS, the Cornelia de Lange
Syndrome Foundation is a non-profit family support organization whose mission
is reaching out, providing help and giving hope; and,
Whereas, Michigan is pleased to join people throughout our country in promoting
a special celebration which seeks to raise awareness of Cornelia de Lange Syndrome,
designed to have a positive and productive impact on the lives of people with
CdLS and their caregivers; and now therefore be it,
Resolved, That I, Jennifer M. Granholm, Governor of the State of Michigan,
do hereby proclaim May 8, 2004, as Cornelia de Lange Syndrome Awareness Day
in Michigan.