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Cornelia de Lange Syndrome Awareness Day

Whereas, The good health and general well-being of the people of Michigan is strengthened by our knowledge and understanding of birth defects, including Cornelia de Lange Syndrome (CdLS); and,

Whereas, Children born with CdLS are usually low in birth weight and develop at a slower rate than other babies, both mentally and physically, and possess other physical complications; and

Whereas, Although a cause has not yet been discovered, dedicated medical professionals are presently involved in valuable research and education activities to explore new possibilities and to offer help; and,

Whereas, A leading advocate and active voice in offering parental and family support while increasing public awareness about CdLS, the Cornelia de Lange Syndrome Foundation is a non-profit family support organization whose mission is reaching out, providing help and giving hope; and,

Whereas, Michigan is pleased to join people throughout our country in promoting a special celebration which seeks to raise awareness of Cornelia de Lange Syndrome, designed to have a positive and productive impact on the lives of people with CdLS and their caregivers; and now therefore be it,

Resolved, That I, Jennifer M. Granholm, Governor of the State of Michigan, do hereby proclaim May 8, 2004, as Cornelia de Lange Syndrome Awareness Day in Michigan.

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