HIV/AIDS Medical Monitoring Project (MMP)
Analyses and Reports
Michigan Medical Monitoring Project Data Summary, based on interviews conducted in the 2009 MMP cycle (PDF)
Michigan MMP Provider Fact Sheet and Data Summary (PDF)
What is the Medical Monitoring Project (MMP)?
The Medical Monitoring Project (MMP) is a surveillance project designed to produce nationally and locally representative data on people living with HIV/AIDS who are receiving care in the United States. In collaboration with the U.S. Department of Health and Human Services' Centers for Disease Control and Prevention (CDC), National Institutes of Health (NIH), and Health Resources and Services Administration (HRSA), 23 state and local health departments are currently implementing the MMP across the nation.
The MMP aims to gain a deeper understanding of health-related experiences and needs of people living with HIV/AIDS who receive HIV care in the U.S. The goals of the project are to:
provide a wide array of local and national estimates of behaviors and clinical outcomes of persons in care for HIV;
describe health-related behaviors;
determine accessibility and use of prevention and support services;
increase knowledge of the care and treatment provided; and
examine variations of factors by geographic area and patient characteristics.
People living with HIV/AIDS, HIV prevention community planning groups, Ryan White CARE Act planning councils and consortia, providers of HIV care, and other policy makers and service planners may use MMP data for planning activities. MMP will provide valuable state and national estimates of health care utilization, quality of care, severity of need, and effectiveness of prevention messages. MMP data may help estimate resource needs for treatment and services for HIV-infected persons. To be effective, programs must meet the current needs of the population. MMP data will provide contextual information on prevention, care-seeking, treatment, and risk behaviors, which will aid in the design and improvement of HIV programs.
Michigan is one of 23 project areas participating in MMP across the US. The Michigan Department of Community Health has identified virtually all HIV care providers in the State of Michigan. A representative sample of these providers is then chosen. The MDCH contacts all sampled providers and later, patients are randomly selected from those providers. Each year, a new sample of providers and patients is drawn.
The MMP has two components: a personal interview and medical record abstraction. MMP staff will invite each selected patient to participate in a face-to-face interview. The interview takes approximately 45 minutes and includes questions concerning their medical history, use of medical and social services, and risk behaviors. Participants are compensated for their time. Trained MMP medical record abstractors will then collect additional information from the patient's medical chart, which complements the data from the interview.
Endorsement Letter (PDF)
PLoS ONE Article Describing Rationale for Project (PDF)
Information for Patients
Information for Providers
Staff Contact Information
Information for Patients
How does MI MMP work?
o First, providers of HIV/AIDS care are invited to participate. Then, the patients of participating providers are randomly chosen to be a part of MI MMP. Patients cannot volunteer for MI MMP. Each year, a different group of providers and patients will be asked to take part. The information collected will be more useful if as many of the selected patients as possible participate in MI MMP.
o Patients who are selected will be asked to participate. Participation is optional and we always respect the patient's decision. If the patient chooses to participate, a MI MMP staff person will conduct a face-to-face interview with, which will take about 45 minutes - 1 hour. The questions will ask about medical history, use of services and the things the patient does in their daily life. The patient does not have to answer any question they do not want to answer. At a later date, a MI MMP staff person will collect information from their medical records on their medical history.
o All patients who participate will be paid for their time.
If you are asked to participate, this is your chance to help by sharing your experience, and this is important because your experience matters! Your experiences could help guide decisions that may improve the lives and the quality of care for people living with HIV/AIDS. Increasing participation will improve the chances of collecting information that truly represents the experiences of patients in HIV care in Michigan. By participating, you are not only representing yourself, but you are also representing others who were not selected for MMP and who have experiences similar to yours.
The MDCH goes through great lengths to protect the confidentiality of patients and providers at every step of the way. All personal information is kept strictly confidential. Information about individuals is never shared with anyone, not even with the patient's physician. Identifying information is never sent to the CDC, and is not part of the data collected. Participants are only tied to the data collected by a unique MMP ID Number.
What if I am not selected to participate?
You will have a chance of being selected in future years of the project. Each year, a new group of HIV care providers and patients are selected. You cannot volunteer for MMP because your provider's participation is needed first. You can help out by making sure your doctor knows about the project and by encouraging him/her to participate if asked by the Michigan Department of Community Health. Finally, you can become involved through our Community Advisory Board.
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Information for providers of HIV care
Providers of HIV care are essential to the success of the Medical Monitoring Project. The MMP has great potential to shape the future of HIV care, treatment, prevention and support services. Maximizing participation of selected providers and their patients will increase the likelihood of obtaining information that is truly representative of patients in care for HIV, in Michigan and across the US. Providers who choose not to participate will be refusing participation for all of their patients, and will not be replaced by another provider in the sample.
The MDCH is taking measures to assure the project is not burdensome to providers or participating patients. MDCH representatives conduct all data collection activities so as not to disrupt providers, their staff, or services to their patients. All personal and health care information collected during the project is secure and confidential.
FAQ For Providers
Q: How are providers and patients chosen?
A: Providers and patients are chosen randomly using scientific methods, without names or other identifying information.
Q: What is my role as a provider if selected?
A: To assist the MDCH staff gather the information they need to facilitate patient participation in the interview, and encourage patients to participate. By participating, you are representing providers like you who were not selected.
Q: As a provider, do I still play a role even if my facility is not selected during the sampling process?
A: Yes, providing your estimated patient load to the health department is an important contribution to the MMP even if you are not selected. Providers may play a role in future years of the project, as a new sample of providers will be selected annually.
Q: As a provider, what if I choose not to participate?
A: If you choose not to participate, you will be refusing participation for all of your patients. You will not be replaced by another provider in the sample.
Q: For providers who participate, how much of their time will be involved?
A: State and local health department staff will conduct all data collection activities so that your staff and services to your patients will not be disrupted.
Q: How can I be certain that patients' privacy will be maintained?
A: The MDCH takes vast measures to ensure patient privacy and confidentiality is maintained. Patient, provider and facility names will not be transmitted to the CDC. Data is stored securely and project staff are trained in security and confidentiality.
Q: As a provider, will my participation be in compliance with HIPAA?
A: The Health Insurance Portability and Accountability Act of 1996 permits health care providers to disclose protected health information to public health authorities for the purposes of preventing or controlling disease, for example, as part of this public health surveillance project.
Q: Can patients decline or withdraw from participating?
A: Yes, patients may decline or change their minds about participating at any time. However, patients selected represent other patients in care, so their participation is important.
Q: Will patients be compensated for their time?
A: Yes, there will be compensation for patients who participate.
Q: What about Institutional Review Board (IRB)?
A: The National Center for HIV, STD, and TB Prevention (NCHSTP), the CDC, has determined that MMP is a surveillance project, and as such is a non-research activity used for disease control program or policy purposes. Because NCHSTP has determined that MMP is not research, it is not subject to human subjects regulations, including federal institutional review board (IRB) review and approval. The Michigan Department of Community Health has also determined that MMP is a public health surveillance activity and is not subject to IRB review and approval. It is up to individual institutions participating in MMP to decide if IRB review and approval is required. If you have questions, please contact the Project Coordinator or your local IRB authority.
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Principal Investigator: Katie Macomber
Project Coordinator: Meosia Lee-Turner
Interviewer/Abstractor: Jamilah Drakeford
Interviewer/Abstractor: Dranoel Knox, MA, LPC
Interviewer/Abstractor: Donnie Walker II
Data Manager: Sarmed Rezzo
Provider Advisory Board Representative: Dr. Indira Brar, MD
Community Advisory Board Representative: Felix Sirls
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