HIV/AIDS Medical Monitoring Project (MMP)
Analyses and Reports
What is the Medical Monitoring Project (MMP)?
The Medical Monitoring Project (MMP) is a surveillance system designed to learn more about the experiences and needs of people who are living with HIV. It is supported by several government agencies and conducted by state and local health departments along with the Centers for Disease Control and Prevention (CDC).
By collecting locally and nationally representative behavioral and medical record data from people living with HIV, MMP will help answer the following questions:
- How many people living with HIV are receiving medical care for HIV?
- How easy is it to access medical care, prevention, and support services?
- What are the met and unmet needs of people living with HIV?
- How is treatment affecting people living with HIV?
MMP is important because it provides information about the behaviors, medical care, and health status of people living with HIV.
MMP is unique in that it describes comprehensive clinical and behavioral information from persons carefully sampled to represent everyone diagnosed with HIV in the United States. Because MMP's estimates are designed to be representative, information gathered from MMP may be used by prevention planning groups, policy leaders, health care providers, and people living with HIV to highlight disparities in care and services and advocate for needed resources.
From 2005-2014, MMP sampled persons from HIV care facilities, so only people receiving HIV medical care were included in the project. Starting in 2015, MMP introduced a new sampling method to include all adults diagnosed with HIV in the United States. This is accomplished using a two-stage sampling strategy. For more information on the 2005-2014 sampling methodology, please see CDC's Medical Monitoring Project website: http://www.cdc.gov/hiv/statistics/systems/mmp/.
The MMP has two components: a personal interview and medical record abstraction. MMP staff will invite each selected patient to participate in a face-to-face interview. The interview takes approximately 45 minutes and includes questions concerning their medical history, use of medical and social services, and risk behaviors. Participants are compensated for their time. Trained MMP medical record abstractors will then collect additional information from the patient's medical chart, which complements the data from the interview.More information:
- Endorsement Letter (PDF)
- Response Cards - Spanish (PDF)
Information for Patients
How are people chosen to participate in MMP?
All HIV diagnoses are reported to public health departments. From this list, the Medical Monitoring Project (MMP) randomly chooses people living with HIV who are 18 years of age or older to participate in MMP. People are selected once a year. So, if you were not selected this year, you may be selected next year.
If I am chosen for MMP, what will I be asked to do?
You will be asked to answer some questions related to your HIV and the care you receive. We will also ask permission to review your medical records.
Why should I participate?
This is your chance to share your experiences. This is important because your experience matters! Everyone with HIV is not selected to participate. You will represent other people living with HIV, so your participation is important. Your responses will help us collect information that truly represents the experiences of all people living with HIV.
Do I have to participate in MMP if I'm selected?
No, you do not have to participate and you can change your mind about participating at any time.
Will I be compensated for my time?
People who participate will receive a token of appreciation for their participation.
Is the information collected kept confidential?
Yes, all information collected will be kept confidential, including your name, your contact information, and, if you have a health care provider, your provider's name or the facility where he or she practices. Participants' names, facility names, and provider names are NOT sent to the CDC and will NOT be used in any reports.
Which areas are participating in MMP?
The following areas are participating: California; Chicago, IL; Delaware; Florida; Georgia; Houston, TX; Illinois; Indiana; Los Angeles, CA; Michigan; Mississippi; New Jersey; New York City, NY; New York State; North Carolina; Oregon; Pennsylvania; Philadelphia, PA; Puerto Rico; San Francisco, CA; Texas; Virginia; and Washington state.
If I am selected to participate, who will be contacting me?
In most states, health department staff will contact you, either by phone or by mail, about being a part of MMP. In a few states, your healthcare provider my contact you first.
Community Advisory Board (CAB)
MMP works with a National Community Advisory Board (CAB) made up of local people from each MMP area who care about people living with HIV and the services they receive. They act as a link between MMP staff and people who participate in MMP.
CAB members make sure the voice of people living with HIV is heard at the city, state, and national levels. They work with their local health department to make sure MMP respects participants' rights and protects their privacy. CAB members also make sure the information collected by MMP answers important public health questions. In addition, in some areas CAB members can answer questions about MMP and let you know how MMP helps the local community.
Information for Providers of HIV Care
Note: As of June 1, 2015, MMP sampling occurs independently of previous provider- based sampling methods. The following questions correspond to the 2005-2014 data collection cycles. We still appreciate provider assistance with recruitment, interview space, and contact information for selected participants.
Providers of HIV care are essential to the success of the Medical Monitoring Project. The MMP has great potential to shape the future of HIV care, treatment, prevention and support services. Maximizing participation of selected providers and their patients will increase the likelihood of obtaining information that is truly representative of patients in care for HIV, in Michigan and across the US. Providers who choose not to participate will be refusing participation for all of their patients, and will not be replaced by another provider in the sample.
The MDCH is taking measures to assure the project is not burdensome to providers or participating patients. MDCH representatives conduct all data collection activities so as not to disrupt providers, their staff, or services to their patients. All personal and health care information collected during the project is secure and confidential.
FAQs for Providers
Q: How are providers and patients chosen?
A: Providers and patients are chosen randomly using scientific methods, without names or other identifying information.
Q: What is my role as a provider if selected?
A: To assist the MDCH staff gather the information they need to facilitate patient participation in the interview, and encourage patients to participate. By participating, you are representing providers like you who were not selected.
Q: As a provider, do I still play a role even if my facility is not selected during the sampling process?
A: Yes, providing your estimated patient load to the health department is an important contribution to the MMP even if you are not selected. Providers may play a role in future years of the project, as a new sample of providers will be selected annually.
Q: As a provider, what if I choose not to participate?
A: If you choose not to participate, you will be refusing participation for all of your patients. You will not be replaced by another provider in the sample.
Q: For providers who participate, how much of their time will be involved?
A: State and local health department staff will conduct all data collection activities so that your staff and services to your patients will not be disrupted.
Q: How can I be certain that patients' privacy will be maintained?
A: The MDCH takes vast measures to ensure patient privacy and confidentiality is maintained. Patient, provider and facility names will not be transmitted to the CDC. Data is stored securely and project staff are trained in security and confidentiality.
Q: As a provider, will my participation be in compliance with HIPAA?
A: The Health Insurance Portability and Accountability Act of 1996 permits health care providers to disclose protected health information to public health authorities for the purposes of preventing or controlling disease, for example, as part of this public health surveillance project.
Q: Can patients decline or withdraw from participating?
A: Yes, patients may decline or change their minds about participating at any time. However, patients selected represent other patients in care, so their participation is important.
Q: Will patients be compensated for their time?
A: Yes, there will be compensation for patients who participate.
Q: What about Institutional Review Board (IRB)?
A: The National Center for HIV, STD, and TB Prevention (NCHSTP), the CDC, has determined that MMP is a surveillance project, and as such is a non-research activity used for disease control program or policy purposes. Because NCHSTP has determined that MMP is not research, it is not subject to human subjects regulations, including federal institutional review board (IRB) review and approval.
The Michigan Department of Health and Human Services has also determined that MMP is a public health surveillance activity and is not subject to IRB review and approval. It is up to individual institutions participating in MMP to decide if IRB review and approval is required. If you have questions, please contact the Project Coordinator or your local IRB authority.
Staff Contact Information
Principal Investigator: Katie Macomber
Project Coordinator: Mary-Grace Brandt
Interviewer/Abstractor: Nadine (248-763-9241)
Interviewer/Abstractor: Jamilah (248-763-9287)
Interviewer/Abstractor: Elizabeth (248-763-9370)
Interviewer/Abstractor: Donnie (248-763-9320)
Data Manager: Sarmed Rezzo
Provider Advisory Board Representative: Shannon Payne, MSN, ANP-BC, RN, ACRN
Community Advisory Board Representative: Felix Sirls
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