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Sudden cardiac death claims the lives of more than 300 Michigan children and young adults between the ages of 1-39 years annually. These deaths are a tremendous loss not only for families, but for entire communities.  Even more disheartening is that many of these deaths could be prevented through screening, detection, and treatment. SCDY victims are too young to die-and every life lost is one too many.  Therefore, working together with a motivated group of experts and advocates, the MDCH Genomics Program initiated a surveillance system to further assess the impact of SCDY and identify action steps for prevention. 

Quick Links 

Events 

On Thursday, September 22, 2011,  The University of Michigan's Cardiovascular Center and C.S. Mott Children's Hospital hosted an educational forum for schools, coaches, athletic trainers and medical professionals on sudden cardiac arrest. The free forum included emergency-response training and protocols, causes of SCA and ways to prevent it. 

Forum presentations are available here

To learn more about the University of Michigan's SCA program visit Protecting the Hearts of Students and Student-Athletes

Surveillance 

Multiple data sources are used to gather information about the burden, impact and causes of SCDY in  Michigan. View the epidemiology overview, or summaries of what has been found from these data sources.  

Data to Action

After reviewing de-identified case summaries, the expert panel recommended patient-, provider-, and system-level changes to prevent future deaths. MDCH staff continues to work with multiple partners including academia, health care delivery systems, industry, communities, and families to accomplish these changes. More than 25 action steps have been identified and grouped into five areas: pre-participation sports screening; provider education and public awareness; public awareness of cardiac symptoms and CPR/AED training; emergency response protocols; and medical examiner protocols.  

Provider Education and Public Awareness 
of SCDY Risk Factors
 

Sudden Cardiac Death of the Young video
Greg Holzman, MD, MPH
Family Physician and Chief Medical Executive,
 Michigan Department of Community Health provides an overview featuring two family stories

Identifying Genetic Risk in Surviving Family Members
Angela Trepanier MS, CGC
Director, Genetic Counseling Program and Asst. Professor, Clinical
Center for Molecular Medicine and Genetics
Wayne
 State University

Hypertrophic Cardiomyopathy
Sharlene Day MD
Director, Hypertrophic Cardiomyopathy Clinic
Assistant Professor of Cardiovascular Medicine
University of Michigan

SCDY: Recognition, Screening and Evaluation
Richard Humes MD
Director, Division of Cardiology, Children's
 Hospital of Michigan
Professor of Pediatrics, Wayne
 State University 

Identification and Treatment of Sudden Death Conditions in Young Patients
David Bradley MD
Director, Pediatric Heart Rhythm Service, CS Mott Children's Hospital
Associate Professor, Department of Pediatrics and Communicable Diseases
University of Michigan

Public Awareness of Cardiac Symptoms 
and CPR/AED Training
 

April 2011: Michigan Student Athlete Cardiac Awareness Month  

 

Medical Examiner Protocols 

SCDY: The Forensic Pathologist's Perspective 
Stephen Cohle MD
Forensic Pathologist and Chief Medical Examiner, Kent County, MI
 

 

Michigan Links

American Heart Association, Midwest Affiliate 
Child Death Review Factsheet 
MDCH Cardiovascular Health, Nutrition and Physical Activity 
 
The KAYLA Foundation 
The Kimberly Anne Gillary Foundation 
U-M Hypertrophic Cardiomyopathy Clinic 
Wes Leonard Heart Team
 

National Links

Cardiovascular Screening of Adolescent Athletes 
CARE Foundation 
Heart Rhythm Foundation 
Heart Rhythm Society 
Hypertrophic Cardiomyopathy Association 
Mended Hearts, Inc. 
NHLBI Working Group- Screening for Sudden Cardiac Death 
Project Adam 
Parent Heart Watch 
Recommendations Related to Preparticipation Screening for Cardiovascular Abnormalities: 2007 Update 
SADS Foundation 
Screening for SCDY: Report from a NHLBI Working Group 
Sudden Cardiac Arrest Association 
Surviving Sudden Cardiac Arrest 

For more information about SCDY or to become involved with prevention of SCDY in Michigan, please call 1- 866-852-1247 or email genetics@michigan.gov  

Return to main genomics page  

Updated  05-09-2012 

Michigan's SCDY Surveillance Project was supported in part by a cooperative agreement from the Centers for Disease Control and Prevention, National Office of Public Health Genomics, 2004-09. 


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