Sudden cardiac death claims the lives of more than 300 Michigan children and young adults between the ages of 1-39 years annually. These deaths are a tremendous loss not only for families, but for entire communities. Even more disheartening is that many of these deaths could be prevented through screening, detection, and treatment. SCDY victims are too young to die-and every life lost is one too many. Therefore, working together with a motivated group of experts and advocates, the MDCH Genomics Program initiated a surveillance system to further assess the impact of SCDY and identify action steps for prevention. Quick Links
Events
On Thursday, September 22, 2011, The University of Michigan's Cardiovascular Center and C.S. Mott Children's Hospital hosted an educational forum for schools, coaches, athletic trainers and medical professionals on sudden cardiac arrest. The free forum included emergency-response training and protocols, causes of SCA and ways to prevent it.
Forum presentations are available here
To learn more about the University of Michigan's SCA program visit Protecting the Hearts of Students and Student-Athletes
Surveillance
Multiple data sources are used to gather information about the burden, impact and causes of SCDY in Michigan. View the epidemiology overview, or summaries of what has been found from these data sources.
Data to Action
After reviewing de-identified case summaries, the expert panel recommended patient-, provider-, and system-level changes to prevent future deaths. MDCH staff continues to work with multiple partners including academia, health care delivery systems, industry, communities, and families to accomplish these changes. More than 25 action steps have been identified and grouped into five areas: pre-participation sports screening; provider education and public awareness; public awareness of cardiac symptoms and CPR/AED training; emergency response protocols; and medical examiner protocols.
Provider Education and Public Awareness
of SCDY Risk Factors
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Sudden Cardiac Death of the Young video Greg Holzman, MD, MPH
Family Physician and Chief Medical Executive, Michigan Department of Community Health provides an overview featuring two family stories
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Identifying Genetic Risk in Surviving Family Members Angela Trepanier MS, CGC
Director, Genetic Counseling Program and Asst. Professor, Clinical
Center for Molecular Medicine and Genetics
Wayne State University
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Hypertrophic Cardiomyopathy Sharlene Day MD
Director, Hypertrophic Cardiomyopathy Clinic
Assistant Professor of Cardiovascular Medicine
University of Michigan
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SCDY: Recognition, Screening and Evaluation Richard Humes MD
Director, Division of Cardiology, Children's Hospital of Michigan
Professor of Pediatrics, Wayne State University
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Identification and Treatment of Sudden Death Conditions in Young Patients David Bradley MD
Director, Pediatric Heart Rhythm Service, CS Mott Children's Hospital
Associate Professor, Department of Pediatrics and Communicable Diseases
University of Michigan
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Public Awareness of Cardiac Symptoms
and CPR/AED Training
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April 2011: Michigan Student Athlete Cardiac Awareness Month
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Medical Examiner Protocols
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SCDY: The Forensic Pathologist's Perspective Stephen Cohle MD
Forensic Pathologist and Chief Medical Examiner, Kent County, MI
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Michigan Links
American Heart Association, Midwest Affiliate
Child Death Review Factsheet
MDCH Cardiovascular Health, Nutrition and Physical Activity
The KAYLA Foundation
The Kimberly Anne Gillary Foundation
U-M Hypertrophic Cardiomyopathy Clinic
Wes Leonard Heart Team
National Links
Cardiovascular Screening of Adolescent Athletes
CARE Foundation
Heart Rhythm Foundation
Heart Rhythm Society
Hypertrophic Cardiomyopathy Association
Mended Hearts, Inc.
NHLBI Working Group- Screening for Sudden Cardiac Death
Project Adam
Parent Heart Watch
Recommendations Related to Preparticipation Screening for Cardiovascular Abnormalities: 2007 Update
SADS Foundation
Screening for SCDY: Report from a NHLBI Working Group
Sudden Cardiac Arrest Association
Surviving Sudden Cardiac Arrest
For more information about SCDY or to become involved with prevention of SCDY in Michigan, please call 1- 866-852-1247 or email genetics@michigan.gov
Return to main genomics page
Updated 05-09-2012
Michigan's SCDY Surveillance Project was supported in part by a cooperative agreement from the Centers for Disease Control and Prevention, National Office of Public Health Genomics, 2004-09.