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    SCDY Header Sudden cardiac death claims the lives of more than 300 Michigan children and young adults between the ages of 1-39 years annually. These deaths are a tremendous loss not only for families, but for entire communities.  Even more disheartening is that many of these deaths could be prevented through screening, detection, and treatment. SCDY victims are too young to die-and every life lost is one too many.  Therefore, working together with a motivated group of experts and advocates, the MDCH Genomics Program initiated a surveillance system to further assess the impact of SCDY and identify action steps for prevention. 

    Quick Links 

    Events 

    Hometown Health Heroes

    April 17, 2013
    Congratulations to the Kimberly Anne Gillary Foundation (Troy), Wes Leonard Heart Team (Fennville), and KAYLA Foundation (Ypsilanti) for being honored as 2013 Hometown Health Heroes during Michigan Public Health Week. They've assisted schools by donating automated external defribrillators (AEDs), providing AED training, and promoting CPR/AED drills to prevent deaths due to sudden cardiac arrest.  To date, over 600 schools have received AEDs and training.

    May 9-10, 2013
    A pediatric conference entitled, "Partners in Pediatric Care", will be hosted by University of Michigan C.S. Mott Children's Hospital Department of Pediatrics and Congenital Heart Center at the Grand Traverse Resort, Traverse City, MI.
     For more information, see www.mottchildren.org/cme.

    Surveillance 

    Multiple data sources are used to gather information about the burden, impact and causes of SCDY in  Michigan. View the epidemiology overview, or summaries of what has been found from these data sources.  

    Data to Action

    After reviewing de-identified case summaries, the expert panel recommended patient-, provider-, and system-level changes to prevent future deaths. MDCH staff continues to work with multiple partners including academia, health care delivery systems, industry, communities, and families to accomplish these changes. More than 25 action steps have been identified and grouped into five areas: pre-participation sports screening; provider education and public awareness; public awareness of cardiac symptoms and CPR/AED training; emergency response protocols; and medical examiner protocols.  

    Provider Education and Public Awareness 
    of SCDY Risk Factors
     

    Sudden Cardiac Death of the Young video
    Greg Holzman, MD, MPH
    Family Physician and Chief Medical Executive,
     Michigan Department of Community Health provides an overview featuring two family stories

    Identifying Genetic Risk in Surviving Family Members
    Angela Trepanier MS, CGC
    Director, Genetic Counseling Program and Asst. Professor, Clinical
    Center for Molecular Medicine and Genetics
    Wayne
     State University

    Hypertrophic Cardiomyopathy
    Sharlene Day MD
    Director, Hypertrophic Cardiomyopathy Clinic
    Assistant Professor of Cardiovascular Medicine
    University of Michigan

    SCDY: Recognition, Screening and Evaluation
    Richard Humes MD
    Director, Division of Cardiology, Children's
     Hospital of Michigan
    Professor of Pediatrics, Wayne
     State University 

    Identification and Treatment of Sudden Death Conditions in Young Patients
    David Bradley MD
    Director, Pediatric Heart Rhythm Service, CS Mott Children's Hospital
    Associate Professor, Department of Pediatrics and Communicable Diseases
    University of Michigan

    Sudden Cardiac Arrest Videoseries    


    Lisa Salberg, founder and president of Hypertrophic Cardiomyopathy Association


    Darryl Elmouchi, M.D., Medical Director of Cardiac Electrophysiology at the Frederick Meijer Heart and Vascular Institute, Spectrum Health Center


    Sharlene Day, M.D., Director, Hypertrophic Cardiomyopathy Program, University of Michigan Cardiovascular Center


    Mark Russell, M.D., and Monica Goble, M.D., Pediatric Cardiologists at University of Michigan

     

    Public Awareness of Cardiac Symptoms 
    and CPR/AED Training
     

    April 2011: Michigan Student Athlete Cardiac Awareness Month  

     

    Medical Examiner Protocols 

    SCDY: The Forensic Pathologist's Perspective 
    Stephen Cohle MD
    Forensic Pathologist and Chief Medical Examiner, Kent County, MI
     

     

    Michigan Links

    American Heart Association, Midwest Affiliate 
    Child Death Review Factsheet 
    MDCH Cardiovascular Health, Nutrition and Physical Activity 
    The Kimberly Anne Gillary Foundation
    Project ADAM
    Thomas Smith Memorial Foundation
    The KAYLA Foundation  
    U-M, C.S. Mott Children's Hospital Sudden Cardiac Arrest Program
     
    Wes Leonard Heart Team
      

    National Links

    Adult Congenital Heart Association
    Cardiovascular Screening of Adolescent Athletes 
    Heart Rhythm Foundation 
    Heart Rhythm Society 
    Hypertrophic Cardiomyopathy Association 
    Mended Hearts, Inc. 
    NHLBI Working Group- Screening for Sudden Cardiac Death 
    Parent Heart Watch 
    Recommendations Related to Preparticipation Screening for Cardiovascular Abnormalities: 2007 Update 
    SADS Foundation 
    Screening for SCDY: Report from a NHLBI Working Group 
    Sudden Cardiac Arrest Association 
    Sudden Cardiac Arrest Foundation 
    Surviving Sudden Cardiac Arrest 
     

    For more information about SCDY or to become involved with prevention of SCDY in Michigan, please call 1- 866-852-1247 or email genetics@michigan.gov  

    Return to main genomics page  

    Updated  03-2014
    Michigan's SCDY Surveillance Project was supported in part by a cooperative agreement from the Centers for Disease Control and Prevention, National Office of Public Health Genomics, 2004-09. 


     

     

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