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SCDY Header Sudden cardiac death claims the lives of more than 300 Michigan children and young adults between the ages of 1-39 years annually. These deaths are a tremendous loss not only for families, but for entire communities.  Even more disheartening is that many of these deaths could be prevented through screening, detection, and treatment. SCDY victims are too young to die-and every life lost is one too many.  Therefore, working together with a motivated group of experts and advocates, the MDCH Genomics Program initiated a surveillance system to further assess the impact of SCDY and identify action steps for prevention. 

Quick Links 

Events 

Hometown Health Heroes

April 17, 2013
Congratulations to the Kimberly Anne Gillary Foundation (Troy), Wes Leonard Heart Team (Fennville), and KAYLA Foundation (Ypsilanti) for being honored as 2013 Hometown Health Heroes during Michigan Public Health Week. They've assisted schools by donating automated external defribrillators (AEDs), providing AED training, and promoting CPR/AED drills to prevent deaths due to sudden cardiac arrest.  To date, over 600 schools have received AEDs and training.

Surveillance 

Multiple data sources are used to gather information about the burden, impact and causes of SCDY in  Michigan. View the epidemiology overview, or summaries of what has been found from these data sources.  

Data to Action

After reviewing de-identified case summaries, the expert panel recommended patient-, provider-, and system-level changes to prevent future deaths. MDCH staff continues to work with multiple partners including academia, health care delivery systems, industry, communities, and families to accomplish these changes. More than 25 action steps have been identified and grouped into five areas: pre-participation sports screening; provider education and public awareness; public awareness of cardiac symptoms and CPR/AED training; emergency response protocols; and medical examiner protocols.  

Provider Education and Public Awareness 
of SCDY Risk Factors
 

Sudden Cardiac Death of the Young video
Greg Holzman, MD, MPH
Family Physician and Chief Medical Executive,
 Michigan Department of Community Health provides an overview featuring two family stories

Identifying Genetic Risk in Surviving Family Members
Angela Trepanier MS, CGC
Director, Genetic Counseling Program and Asst. Professor, Clinical
Center for Molecular Medicine and Genetics
Wayne
 State University

Hypertrophic Cardiomyopathy
Sharlene Day MD
Director, Hypertrophic Cardiomyopathy Clinic
Assistant Professor of Cardiovascular Medicine
University of Michigan

SCDY: Recognition, Screening and Evaluation
Richard Humes MD
Director, Division of Cardiology, Children's
 Hospital of Michigan
Professor of Pediatrics, Wayne
 State University 

Identification and Treatment of Sudden Death Conditions in Young Patients
David Bradley MD
Director, Pediatric Heart Rhythm Service, CS Mott Children's Hospital
Associate Professor, Department of Pediatrics and Communicable Diseases
University of Michigan

Sudden Cardiac Arrest Videoseries    


Lisa Salberg, founder and president of Hypertrophic Cardiomyopathy Association


Darryl Elmouchi, M.D., Medical Director of Cardiac Electrophysiology at the Frederick Meijer Heart and Vascular Institute, Spectrum Health Center


Sharlene Day, M.D., Director, Hypertrophic Cardiomyopathy Program, University of Michigan Cardiovascular Center


Mark Russell, M.D., and Monica Goble, M.D., Pediatric Cardiologists at University of Michigan

 

Public Awareness of Cardiac Symptoms 
and CPR/AED Training
 

April 2011: Michigan Student Athlete Cardiac Awareness Month  

 

Medical Examiner Protocols

SCDY: The Forensic Pathologist's Perspective 
Stephen Cohle MD
Forensic Pathologist and Chief Medical Examiner, Kent County, MI
 

 

Michigan Links

American Heart Association, Midwest Affiliate 
Child Death Review Factsheet 
MDCH Cardiovascular Health, Nutrition and Physical Activity 
The Kimberly Anne Gillary Foundation
Project ADAM
Thomas Smith Memorial Foundation
The KAYLA Foundation  
U-M, C.S. Mott Children's Hospital Sudden Cardiac Arrest Program
 
Wes Leonard Heart Team
  

National Links

Adult Congenital Heart Association
Cardiovascular Screening of Adolescent Athletes 
Heart Rhythm Foundation 
Heart Rhythm Society 
Hypertrophic Cardiomyopathy Association 
Mended Hearts, Inc. 
NHLBI Working Group- Screening for Sudden Cardiac Death 
Parent Heart Watch 
Recommendations Related to Preparticipation Screening for Cardiovascular Abnormalities: 2007 Update 
SADS Foundation 
Screening for SCDY: Report from a NHLBI Working Group 
Sudden Cardiac Arrest Association 
Sudden Cardiac Arrest Foundation 
Surviving Sudden Cardiac Arrest 
 

For more information about SCDY or to become involved with prevention of SCDY in Michigan, please call 1- 866-852-1247 or email genetics@michigan.gov  

Return to main genomics page  

Updated  03-2014
Michigan's SCDY Surveillance Project was supported in part by a cooperative agreement from the Centers for Disease Control and Prevention, National Office of Public Health Genomics, 2004-09. 


 

 

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