May 4, 2018: Heterotaxy Syndrome Awareness Day

WHEREAS, heterotaxy syndrome is a congenital condition that affects the development, placement and presence of internal organs; and,

WHEREAS, the public and many medical professionals are unaware of heterotaxy syndrome; and,

WHEREAS, heterotaxy syndrome affects many body systems and requires a team of many specialists for treatment; and,

WHEREAS, families struggle to educate medical teams and are often the only common thread between medical specialties; and,

WHEREAS, mortality is high, but due to lack of tracking and research the exact numbers are unclear; and,

WHEREAS, those with heterotaxy syndrome that survive to adulthood find their condition largely unknown to the community; and,

WHEREAS, funding for research into causes of the condition as well as holistic treatment of heterotaxy syndrome are low; and,

WHEREAS, Heterotaxy Syndrome Awareness Day provides an opportunity for families whose lives have been affected to celebrate life and to remember loved ones lost, to honor dedicated health professionals and to meet others and know they are not alone; and,

WHEREAS, the establishment of Heterotaxy Syndrome Awareness Day will also provide the opportunity to share experience and information with the public and the media, in order to raise public awareness about heterotaxy syndrome;

NOW, THEREFORE, I, Rick Snyder, governor of Michigan, do hereby proclaim May 4, 2018 as Heterotaxy Syndrome Awareness Day in Michigan.