October 2018: Chronic Recurrent Multifocal Osteomyelitis (CRMO) Awareness Month
WHEREAS, Chronic Recurrent Multifocal Osteomyelitis (CRMO) is an autoinflammatory disease affecting the bones of the body, causing pain, lesions, and inflammation which can eventually lead to fracturing or breaking of the bones and other physical problems; and,
WHEREAS, there are limited treatments for CRMO, and the limited few are very painful and expensive, and there is currently no cure; and,
WHEREAS, the path to a diagnosis is often a long one with many other possibilities that need to be ruled out, delaying access to appropriate medical care for those who are affected; and,
WHEREAS, countless friends, loved ones, spouses, and caregivers must shoulder the physical, emotional, and financial burdens that CRMO causes; and,
WHEREAS, the severity of the symptoms of CRMO and the limited public awareness of the disease can cause patients to be isolated and lead to depression. Many of the affected become diagnosed as children and it is very hard for them to feel and enjoy life as their peers do. CRMO is often called an invisible illness as many of the children affected appear fine on first glance, but deeper down are dealing with high levels of pain, frustration and sadness; and,
WHEREAS, the goal of CRMO Awareness Month is to raise public awareness and understanding of the disorder, which has numerous manifestations, affecting children of all ages, races, genders and backgrounds; and,
NOW, THEREFORE, I, Rick Snyder, governor of Michigan, do hereby proclaim October 2018 as Chronic Recurrent Multifocal Osteomyelitis (CRMO) Awareness Month in Michigan.