April 16, 2016: 4p/wolf-Hirschhorn syndrome awareness day
WHEREAS, children with 4p- syndrome are usually born with low birth weight and develop slowly, both cognitively and physically, compared to their same-age peers and experience medical complications while still maintaining pleasant and lovable personalities; and,
WHEREAS, dedicated professionals are presently involved in valuable research to explore new therapies and diagnostic tools to offer hope to persons with 4p-syndrome; and,
WHEREAS, the 4p- Support Group estimates that approximately 1,000 individuals in the United States have 4p- syndrome, though it is thought many remain undiagnosed; and,
WHEREAS, it is important to work together as a people and as a state to increase research into understanding the syndrome, to advocate for effective diagnostic screenings, to support the development of improved therapies for early intervention and other necessary and critical treatments, as well as join in recognizing and applauding the valuable role which families and advocates of those who have 4p- syndrome play in helping our medical community to advance the knowledge and awareness of this syndrome; and,
WHEREAS, the state of Michigan is pleased to join people throughout our nation in promoting a special celebration which seeks to raise awareness of 4p- syndrome, designed to have a positive and productive impact on the lives of all those affected and their caregivers;
NOW, THEREFORE, I, Rick Snyder, governor of Michigan, do hereby proclaim April 2016 as 4p/Wolf-Hirschhorn Syndrome Awareness Day in Michigan.