May 2, 2016: Nonketotic Hyperglycinemia (NKH) Awareness Day
WHEREAS, the month of May is an important time for members of the Nonketotic Hyperglycinemia (NKH) community, for it marks a time for all families affected by it to unite and spread awareness; and,
WHEREAS, individuals with NKH often have very serious neurological disorders and may not survive infancy. There are less than 500 children worldwide living with NKH; and,
WHEREAS, NKH affects 1 in 60,000 births and is the inability to break down glycine, which is a neurotransmitter. This leads to a buildup of glycine in the blood and spinal fluid which can cause seizures, breathing issues, feeding issues and issues with bowel and bladder and muscle tone. There is currently no cure and very few treatment options; and,
WHEREAS, it is important to raise awareness of NKH in order to improve the lives of those affected by it;
NOW, THEREFORE, I, Rick Snyder, governor of Michigan, do hereby proclaim May 2, 2016 as NKH Awareness Day in Michigan.