July 30, 2016: Gastroschisis Awareness Day
WHEREAS, gastroschisis is a birth defect which causes the intestines to protrude from the abdomen and is rapidly increasing in incidence; and,
WHEREAS, many Americans living with gastroschisis have serious and debilitating conditions that have a significant impact on their lives including, but not limited to, failure to thrive/slow growth, short bowel syndrome, multiple organ transplants, and long term feeding issues; and,
WHEREAS, individuals and families affected by gastroschisis often experience problems such as a sense of isolation, difficulty in obtaining an accurate and timely diagnosis, few treatment options, and problems related to accessing or being reimbursed for treatment; and,
WHEREAS, the cause of gastroschisis is relatively unknown. Patients and their families must bear a large share of the burden for things such as raising funds for research; and,
WHEREAS, Avery's Angels Gastroschisis Foundation (AAGF) is organizing a nationwide observance of Gastroschisis Awareness Day on July 30, 2016; and,
WHEREAS, Avery John Rauen, the son of the founder of Avery’s Angels, passed away from complications of his gastroschisis on July 30, 2009 at UNC hospital. This date is to commemorate him and all others who have had or continue to live with gastroschisis;
NOW, THEREFORE, I, Rick Snyder, governor of Michigan, do hereby proclaim July 30, 2016 as Gastroschisis Awareness Day in Michigan.