September 2016: Craniofacial Acceptance Month

WHEREAS, 1 in 500 children in the United States are born with cleft palate with or without the occurrence of cleft lip each year. The diagnosis of cleft palate with or without the occurrence of cleft lip is the most prevalent birth defect in the United States; and,

WHEREAS, the exact cause of cleft palate with or without the occurrence of cleft lip is unknown, however, research indicates that it is multifactorial in nature, resulting from a combination of genetic and environmental factors; and,

WHEREAS, children born with cleft lip and palate undergo at least two operations by the time they are 12 months of age in order to correct their deformity; and,

WHEREAS, cleft palate with or without the occurrence of cleft lip is not the only diagnosis recognized during Craniofacial Acceptance Month. Other complex craniofacial deformities include but are not limited to Apert syndrome, Crouzon syndrome, 22q11.2 deletion syndrome, and craniosynostosis and are also included within Craniofacial Acceptance Month; and,

WHEREAS, Apert syndrome affects 1 in every 100,000 children and is caused by a single gene mutation which causes pre-mature fusion of the bones comprising the skull. Children born with Apert syndrome undergo an extensive surgery as infants in order to reshape their skull so as to not hinder brain growth and development; and,

WHEREAS, Crouzon syndrome affects 1 in 25,000 children and is the most common craniosynostosis syndrome. Crouzon syndrome is the result of a single gene mutation. Children born with Crouzon syndrome require an extensive surgery to reshape their skull during infancy. Children affected by Crouzon syndrome may also require additional surgeries later in life; and, 

WHEREAS, children impacted by craniofacial anomalies require a team of experts in order to manage their care and to achieve the best outcomes; and,

WHEREAS, these teams work tirelessly each day in order to improve the lives of the children they serve and to bring awareness and acceptance of the craniofacial population to Michigan;

NOW, THEREFORE, I, Rick Snyder, governor of Michigan, do hereby proclaim September 2016 as Craniofacial Acceptance Month in Michigan.