September 30, 2016: Limb Girdle Muscular Dystrophy Awareness Day

WHEREAS, Limb Girdle Muscular Dystrophy (LGMD) is considered a rare disease that is known to cause muscle weakness and wasting; and,

WHEREAS, LGMD most commonly affects muscles closest to the body (proximal muscles), specifically the muscles of the shoulders, upper arms, pelvic area, and thighs; and,

WHEREAS, LGMD isn’t really one disease but a group of hereditary, genetic, neuromuscular disorders with over 25 sub-types currently identified; and,

WHEREAS, LGMD is a progressive, serious and debilitating condition that has a significant impact on the lives of those affected and symptoms can begin in childhood, adolescence or adulthood; and,

WHEREAS, individuals and families affected by LGMD often experience problems such as diagnosis delay, difficulty finding a medical expert and lack of access to treatments or ancillary services; and,

WHEREAS, although research is ongoing and important advances are being made every day in understanding the genetic causes for the disease, there is still no known cure or treatment;

NOW, THEREFORE, I, Rick Snyder, governor of Michigan, do hereby proclaim September 30, 2016 as Limb Girdle Muscular Dystrophy Awareness Day (LGMD) in Michigan.