December 4, 2016: Pallister-Killian Syndrome (PKS) Awareness Day
WHEREAS, Pallister-Killian Syndrome (PKS) is a rare genetic disorder resulting from the double duplication of the short arm of chromosome 12, causing children to suffer low muscle tone, seizures, global developmental delays, hearing and vision loss and other conditions; and,
WHEREAS, PKS happens randomly at conception and for no known reason. It is thought that there are fewer than 400 diagnosed cases in the world. However, many doctors believe that the incidences of PKS are much higher. As many as 2,000 possible cases exist in the United States alone. Improper testing methods and lack of awareness of this conditions are the main causes of these undiagnosed cases; and,
WHEREAS, it is the goal of this resolution to promote research, education, and raise awareness within the medical community to ensure early diagnoses of children with PKS; and,
WHEREAS, increased awareness of this condition will help families and caregivers of children with PKS acquire the resources and support they need to manage this disorder;
NOW, THEREFORE, I, Rick Snyder, governor of Michigan, do hereby proclaim December 4, 2016 as Pallister-Killian Syndrome (PKS) Awareness Day in Michigan.