May 2018: Cystic Fibrosis Awareness Month

WHEREAS, cystic fibrosis, commonly referred to as CF, is a genetic disease affecting approximately 30,000 children and adults in the United States and nearly 70,000 children and adults worldwide. 1,063 of the individuals affected by CF live in the state of Michigan; and,

WHEREAS, a defective gene causes the body to produce an abnormally thick, sticky mucus that clogs the lungs, and these secretions produce life-threatening lung infections and obstruct the pancreas, preventing digestive enzymes from reaching the intestines to help break down and absorb food; and,

WHEREAS, more than 10 million Americans are symptomless carriers of the defective CF gene, and CF occurs in approximately one of every 3,500 live births in the United States; and,

WHEREAS, the median age of survival for a person with CF is 41.1 years; and,

WHEREAS, nearly 50% of the CF population is 18 years of age and older, and people with CF have a variety of symptoms attributed to the more than 1,800 mutations of the CF gene; and,

WHEREAS, infant blood screening to detect genetic defects is the most reliable and least costly method to identify persons likely to have CF; and,

WHEREAS, early diagnosis of CF permits early treatment and enhances quality of life and longevity, and the treatment of CF depends on the stage of the disease and the organs involved; and,

WHEREAS, there are 7 world-class treatment centers in Michigan, which specialize in the diagnosis of CF and the care of persons with CF; and,

WHEREAS, a critical component of treating patients with CF includes access to innovative treatments, which can play a crucial role in the lives of patients with CF; and,

WHEREAS, Michigan based non-profit advocacy groups such as the Rock CF Foundation, Bonnell Foundation, Hunt for a Cure, and The Cystic Fibrosis Foundation help raise awareness of CF and provide support to the local CF Community;

NOW, THEREFORE, I, Rick Snyder, governor of Michigan, do hereby proclaim May 2018 as Cystic Fibrosis Awareness Month in Michigan.