May 2018: Fibromuscular Dysplasia and Spontaneous Coronary Artery Dissection (SCAD) Awareness Month

WHEREAS, Fibromuscular Dysplasia (FMD) is a disease that causes abnormal cell growth of the arterial wall. FMD can lead to areas of narrowing (stenosis), beading, aneurysms, and dissections (tears) of the arterial wall; and,

WHEREAS, until recently there has been very little progress in understanding the disease since it was first diagnosed in 1938. There is still no known cause or cure for the disease and there are no set protocols to treat the disease; and,

WHEREAS, FMD has always been considered and is still classified as a rare disease. Many researchers believe FMD is an under-diagnosed disease. Data suggest that 4-5% of the population may be affected by the disease; and,

WHEREAS, ninety percent of the patients affected by FMD are women, but men and children also get the disease. There are different classifications of FMD, the two most common types are multi focal and focal fibroplasia. Unlike the adult population, children tend to be diagnosed with focal FMD, which can be more aggressive. Some patients present with both types of the disease and there is no understanding of why there are differences; and,

WHEREAS, there is still much needed awareness and research of the disease. FMD patients present with the same symptoms that much of the general population is affected with, such as hypertension, headaches, and dizziness. Others present with TIA/stroke, dissection (tear) of an artery, aneurysm, swooshing noise in the ear, and renal infarction. Children can present with symptoms such as high blood pressure, headaches, insomnia, fatigue, and abdominal pain. Misdiagnoses of FMD can lead to severe consequences and disability; and,

WHEREAS, it has been recognized that many women who are diagnosed with Spontaneous Coronary Artery Dissections (SCAD) have underlying FMD. SCAD can cause acute coronary syndrome, heart attack and death. SCAD is more common than previously thought and it is associated with pregnancy and physical and emotional stress; and,

WHEREAS, individuals and families affected by FMD and SCAD often experience a sense of isolation, fear and difficulty in obtaining an accurate and timely diagnosis as well as optimal treatment options; and,

WHEREAS, many diseases are relatively well-known but FMD and SCAD are not well understood by the public or medical community. Patients and their families must bear a large share of the burden for things such as educating others, including their own physicians, and raising funds for awareness and research;

NOW, THEREFORE, I, Rick Snyder, governor of Michigan, do hereby proclaim May 2018 as Fibromuscular Dysplasia and Spontaneous Coronary Artery Dissections (SCAD) Awareness  Month in Michigan.