June 30, 2015: Arthogryposis Awareness Day

WHEREAS, Arthrogryposis Multiplex Congenita is a condition that causes many joints to be stiff and crooked at birth. A newborn with Arthrogryposis lacks the normal range of motion in one or more joints. A joint that lacks normal range of motion is called a joint contracture. These joint contractures develop before birth (prenatally) and are evident at birth (congenitally). Arthro means joint, Gryposis means crooked, multiplex means multiple and congenita means existing at birth or present at birth. Arthrogryposis Multiplex Congenita is an umbrella and descriptive diagnosis. This means Arthrogryposis can be caused by an underlying condition or syndrome. This underlying condition is usually the type of Arthrogryposis; and,

WHEREAS, Joints that can be affected by AMC include the hands, feet, hips, knees, elbows, shoulders, wrists, fingers, toes, the jaw and the spine. Any and all joints can be affected but it is possible for some joints to be unaffected. No two people are affected exactly the same way; and,

WHEREAS, Arthrogryposis occurs is 1 in 3,000 live births; and,

WHEREAS, A newborn has to have three(3) contracted joints in two(2) different body areas to be given a diagnosis of Arthrogryposis;

WHEREAS, Arthrogryposis is an umbrella diagnosis, meaning that its part of many other conditions and syndromes. There are over 400 different types. Amyoplasia, Distal Escobar Syndrome is the more common types. Some individuals never have their type of Arthrogryposis identified; and,

WHEREAS, Arthrogryposis is not curable but it’s very treatable. Treatment goals are usually related to promote as much independence as possible in actives of daily living;

NOW, THEREFORE, I, Rick Snyder, governor of Michigan, do hereby proclaim June 30, 2015 as Arthrogryposis Awareness Day in Michigan.