July 30, 2015: Gastroschisis Awareness Day

WHEREAS, There are 1 in 2229 individuals born with gastroschisis in the United States, and roughly the same number born in Michigan annually; and,

WHEREAS, This disease may affect small numbers of people, gastroschisis affects many Americans; and,

WHEREAS, Many Americans living with gastroschisis have serious and debilitating conditions that have a significant impact on the lives of those affected including but not limited to failure to thrive/slow growth, short bowel syndrome, multiple organ transplants, and long term feeding issues; and,

WHEREAS, Individuals and families affected by gastroschisis often experience problems such as a sense of isolation, difficulty in obtaining an accurate and timely diagnosis, few treatment options, and problems related to accessing or being reimbursed for treatment; and,

WHEREAS, The cause of gastroschisis is relatively unknown, patients and their families must bear a large share of the burden for things such as raising funds for research; and,

WHEREAS, Hundreds of residents of Michigan are among those affected by gastroschisis; and,

WHEREAS, Michigan resident – Myra Lea Moblo-Wynkoop- has passed away shortly after birth on January 14, 2015 at Charlevoix Area Hospital due to complications caused by gastroschisis; and,

WHEREAS, The founder of Avery's Angels son– Avery John Rauen –passed away from complications of his gastroschisis on July 30, 2009 at UNC hospital, and this date is to commemorate him and all others living with or deceased from gastroschisis;

NOW, THEREFORE, I, Rick Snyder, governor of Michigan, do hereby proclaim  July 30, 2015 as Gastroschisis Awareness Day in Michigan.