October 2015: Rett Syndrome Awareness Month

WHEREAS, Rett syndrome is a genetic neurological disorder that occurs almost exclusively in females; and,

 

WHEREAS, Every 2 hours a girl is born with Rett syndrome, but its symptoms usually do not appear until 6 to 18 months; and,

 

WHEREAS, A regression period leads to lifelong impairments with multiple dysfunctions including: speech loss, development of seizures, irregular breathing patterns, and more than half of those effected lose their ability to walk. The hallmark sign of Rett syndrome being near constant repetitive hand movements while awake; and,

 

WHEREAS, Those diagnosed with Rett syndrome require maximum assistance with daily living activities; and,

 

WHEREAS, The disorder is not degenerative and biomedical research is proving that neurological symptoms could be reversed even after decades of severe symptoms; and,

 

WHEREAS, The International Rett Syndrome Foundation is the world’s largest private source of funds for Rett syndrome research addressing the full spectrum of this developmental disorder while advocating to improve the quality of life for the patients and their families; and,

 

WHEREAS, A continuation of efforts to bringing awareness to the medical community, therapists, teachers, caregivers, and the general public as well is sought.

 

NOW THEREFORE, I, Rick Snyder, governor of Michigan, do hereby proclaim October 2015 as Rett Syndrome Awareness Month in Michigan.