May 5, 2016: Cri Du Chat Awareness Day

WHEREAS, the 5p- Society of North America, the National Support group for Individuals with Cri du Chat Syndrome, along with support organizations from around the world are proud to announce that May 1-7, 2016 will be designated as International Cri Du Chat Syndrome Awareness Week; and,

WHEREAS, May 5 has been designated internationally as Cri du Chat Syndrome Day; and,

WHEREAS, the 5p- Society serves as a state and national resource to provide comprehensive information and support for families, caregivers, providers and educators; and,

WHEREAS, individuals with Cri Du Chat deserve to be recognized for what they can do versus what they cannot do and our hope is that we can raise awareness of Cri Du Chat Syndrome; and,

WHEREAS, each year in the United States alone, approximately 50 to 60 children are born with 5p- Syndrome (five p minus), also known as Cat Cry Syndrome or Cri du Chat Syndrome. Some common characteristics of Cri du Chat Syndrome at birth are a high pitched cry, low birth weight, poor muscle tone, microcephaly, and potential medical complications. "5p-" is a term used by geneticists to describe a portion of chromosome number five that is missing in these individuals; and,

WHEREAS, one of the goals of Cri Du Chat Awareness Week is to end the outdated misinformation given to families when their child is diagnosed with Cri Du Chat Syndrome; and,

WHEREAS, children born with this rare genetic defect will most likely require ongoing support from a team of parents, therapists, as well as medical and educational professionals to help the child achieve his or her maximum potential; and,

WHEREAS, there are many individuals with Cri Du Chat Syndrome living in Michigan who are members of the 5p- Society;

NOW, THEREFORE, I, Rick Snyder, governor of Michigan, do hereby proclaim May 5, 2016 Cri Du Chat Awareness Day in Michigan.