WHEREAS, gastroschisis is a birth defect which causes the intestines to protrude from the abdomen and is rapidly increasing in incidence; and,
WHEREAS, there are 1 in 2,229 individuals born with gastroschisis in the United States, and 1 in 5,882 born in Michigan annually; and,
WHEREAS, many Americans living with gastroschisis have serious and debilitating conditions that have a significant impact on the lives of those affected including, but not limited to, failure to thrive/slow growth, short bowel syndrome, multiple organ transplants, and long term feeding issues; and,
WHEREAS, individuals and families affected by gastroschisis often experience problems such as a sense of isolation, difficulty in obtaining an accurate and timely diagnosis, few treatment options, and problems related to accessing or being reimbursed for treatment; and,
WHEREAS, the cause of gastroschisis is relatively unknown, and patients and their families must bear a large share of the burden for things such as raising funds for research; and,
WHEREAS, Avery's Angels Gastroschisis Foundation (AAGF) has organized a nationwide observance of Gastroschisis Awareness Day on July 30, 2013, and every year thereafter; and,
WHEREAS, the founder of Avery's Angels son– Avery John Rauen –passed away from complications of his gastroschisis on July 30, 2009 and this date is to commemorate him and all others living with, or deceased from, gastroschisis;
NOW, THEREFORE, I, Rick Snyder, governor of Michigan, do hereby proclaim July 30, 2017 as Gastroschisis Awareness Day in Michigan.