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Parents & Caregivers
CDC Parent’s Guide ~ You Are Not Alone
Materials on this website are geared toward parents of teens with epilepsy. The resources can be used to talk about the issues with the people who interact with you and your teen. Use it to learn how to support and encourage your teen to take charge and learn how to manage their seizures and their life.
Epilepsy & My Child Tool Kit (Newly Diagnosed)
Developed by the National Epilepsy Foundation, this printable toolkit is a resource for parents or caregivers whose child has recently been diagnosed with epilepsy. It contains information about epilepsy, managing epilepsy, daily life with epilepsy, life stages, and resource and forms.
The tools and information on this website were developed in the United Kingdom but may also be helpful to people living elsewhere.
Family Center for Children with Special Health Care Needs: 1-800-359-3722
The Family Center offers emotional support, information, and connections to community-based resources to families of children and youth with special health care needs.
This guidebook was developed by Johns Hopkins Medicine. It introduces parents and caregivers to important facts and terms, and it answers common questions about epilepsy in children.
Adolescents, Youth, & Young Adults
My Seizure Diary was developed by the National Epilepsy Foundation and is a self-management tool to help you record, track, and manage your seizures and epilepsy. The Diary lets you record your medical history, seizures, medications, side effects, moods, or other personal experiences.
This website helps people with epilepsy become active leaders in their own treatment, working hand-in-hand with doctors. These easy-to-use tools allow patients to create personalized reports of logged seizure activity and medication history that can be shared with their medical team.
The Epilepsy Society's new smartphone app for Android and iPhone, with seizure diary and first aid information, is an interactive way to help you to manage your epilepsy via your phone. Find out more about the app and how to download.