September 8, 2021: Lissencephaly Awareness Day

WHEREAS, Lissencephaly is a rare gene-linked brain malformation, causing the brain to have less or no ridges or folds and making it appear smooth. It is estimated about 1 in 100,000 individuals are born with this condition; and,

 

WHEREAS, people living with this condition may also suffer from hypertonia, epilepsy, swallowing disorders, developmental delays, and more; and,

 

WHEREAS, addressing the complex medical needs early in life is imperative to helping families successfully care for their children at home.

 

WHEREAS, the need for more education, awareness, and support for families is critical; and,

 

WHEREAS, Lissencephaly Foundation Inc; a nonprofit charitable organization wants to help support these individuals through our continued efforts of empowering families and educating communities;

 

NOW, THEREFORE, I, Gretchen Whitmer, governor of Michigan, do hereby proclaim September 8, 2021, as Lissencephaly Awareness Day in Michigan, and urge our citizens, patients, caregivers, medical professionals, and all agencies and organizations interested in supporting these families to unite on that day in observance of such exercises.