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Birth Defects toolkit graphic

The Department of Community Health, Genetics and Birth Defects Program is pleased to present this virtual version of the Birth Defects Toolkit. The following are links to resources for families and professionals that may be helpful in caring for children with birth defects and genetic conditions. A limited number of toolkits with resource materials in hard copy, filed in a handy organizer, are available at no charge to Michigan professionals who work with families of children with special needs. Click here for a toolkit order form. Forms for ordering multiple copies of selected pamphlets are also included, and electronic updates are provided periodically. Please call 1-866-852-1247 or email genetics@michigan.gov for more information or to request a toolkit.

 

  Health and Support Services for Families   

1.  

Michigan Newborn Screening Saves Babies pamphlet (also in SpanishArabic )  

18.  

MiChild (also in Arabic and Spanish ) pamphlet  

2.  

Child Development Wheel (also in Spanish, Arabic)  

19.  

Michigan's Community Hearing Screening Program pamphlet (also in Spanish , Arabic 

3.  

Children with Special Needs Fund (website)  

20.  

Resources for Families of Infants and Toddlers with Special Needs pamphlet  

4.  

Children's Special Health Care Services (website) Brochure (also in Spanish, Arabic)  

21.  

Special Care for Special Kids: A Guide for Michigan Families guidebook  

5.  

Concerned About the Development or Health of Your Child? Early On pamphlet (also in Spanish and Arabic)

22.  

Watch Me Grow Calendar (also in Spanish) (website)  

6.  

CSHCS Emergency Preparedness Guide 

23.  

Welcome to the Michigan WIC Program (website)  

7.  

CSHCS Support Parent Training Course  

24.  

Michigan Alliance for Families brochure

8.  

Family Guidance: Transition Planning for Youth pamphlet  

25.  

Share - March of Dimes brochure 

9.  

 

26.  

Questions and Answers: Dept. of Human Services pamphlet 

10. 

Family Support Network pamphlet 

27. 

Healthy Kids pamphlet 

11. 

 

28.  

Center for Education Networking  (website)  

12.  

Genetics and Young Children with Hearing Loss pamphlet  

29.  

CSHCS Insurance Premium Payment Benefit pamphlet  

13.  

Guide-By-Your-Side  pamphlet  

 30.  

Family Health History Fact Cards    

14.  

Hands and Voices pamphlet  

 31.  

Michigan Diaper and Incontinence Supplies Program  

15.  

Helping Young People Succeed in School Project Find pamphlet (also in Spanish and Arabic)

 32.  

A Family Guide to Respite for Children in Michigan  

16.  

Michigan Genetic Counseling Services pamphlet  

 33.  

Special Olympics  brochure   

17.  

Michigan Genetic Support Group Directory  

   

Resource and Referral Information for Providers   

1. 

A Guide to Genetics Referral pamphlet 

15. 

Order forms: 
MiGRC.org ,  
Early on and Project Find,
Early Hearing, Detection and Intervention Program 

2. 

Babies with Birth Defects: A Referral Guide for Michigan Hospitals booklet with sample form  

16. 

Top 20 Resource and Referral pocket card  

3. 

Children's Special Health Care Services local office contacts (also online at www.michigan.gov/mdch, then search "CSHCS Provider Information") 

17. 

Translation and Interpreter Services listing  

4. 

CSHCS Medical Eligibility Report Form  

18.  

Web-based Training online at   training.mihealth.org  
Birth Defects Registry Reporting; Newborn Screening;  What is Children's Special Health Care Services?  

5.   

Community Mental Health Service Programs  

19.   

Early On®    Guide for Physicians

6.   

Early On® Coordinators  listing by county  

20.   

Medical Home Resources  

7.   

Early On®/Project Find  (website)  

21.   

Resources on Grieving  

8.   

Early On®/ Project Find  referral fax form  

22.   

What is a Genetic Counselor?  NEW!   
Online resource only!  

9. 

Hospice Care for Children with Life-Limiting Conditions fact sheet and Michigan listing 

 

 

10. 

Local Health Department Directory  

 

 

11. 

MCIR pamphlet 

 

 

12. 

Medical Home for Children with Special Needs fact sheet 

 

 

13. 

MI Genetics Connection Resource Center  

 

 

14. 

Michigan Directory of Service Providers for Infants, Toddlers & Students with Disabilities 

   

 

Condition Fact Sheets   

Newborn Screening   

Complete list of disorders tested and fact sheets available  

Genetic Disorders   

 

Fetal Alcohol Effects

Look and Feel Your Best with Folic Acid (pamphlet)

National Respite Network and Resource Center

Family Guide to Respite for Children in Michigan

The Michigan Monitor Winter 2013 (Birth Defects Newsletter)

Family Support Subsidy Program Brochure 

Region 4 Genetics Collaborative

Michigan Tobacco QuitLine wallet card (website)

The Birds and the Bees…and Diabetes(website)  

Toolkit Updates   

October 2008  

February 2009  

December 2009  

March 2010  

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