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Birth Defects toolkit graphic

The Department of Community Health, Genetics and Birth Defects Program is pleased to present this virtual version of the Birth Defects Toolkit.  The following are links to resources for families and professionals that may be helpful in caring for children with birth defects and genetic conditions.   A limited number of toolkits with resource materials in hard copy, filed in a handy organizer, are available at no charge to Michigan professionals who work with families of children with special needs. Click here for a toolkit order form.  Forms for ordering multiple copies of selected pamphlets are also included, and electronic updates are provided periodically. Please call 1-866-852-1247 or email genetics@michigan.gov for more information or to request a toolkit.

  Health and Support Services
for Families
 

 1. 

Michigan Newborn Screening Saves Babies  pamphlet (also in Spanish , Arabic ) 

18. 

MiChild  (also in Arabic and Spanish ) pamphlet 

 2. 

Child Development Wheel(also in Spanish, Arabic) 

19. 

Michigan's Community Hearing Screening Program pamphlet  (also in  Spanish Arabic )

 3. 

Children with Special Needs Fund (website) 

20. 

Resources for Families of Infants and Toddlers with Special Needs pamphlet 

4. 

Children's Special Health Care Services (website) Brochure (also in  SpanishArabic

21. 

Special Care for Special Kids: A Guide for Michigan Families guidebook 

5. 

Concerned About the Development or Health of Your Child?  Early On ® pamphlet (also in  Spanish, Arabic)

22. 

Watch Me Grow Calendar (also in Spanish)  (website) 

6. 

CSHCS Emergency Preparedness Guide (website) 

23. 

Welcome to the Michigan WIC Program (website) 

7. 

CSHCS Support Parent Training Course 

24. 

Michigan Alliance for Families brochure (also available in Spanish)

8. 

Family Guidance: Transition Planning for Youth pamphlet 

25. 

Share - March of Dimes brochure

9. 

Family Guide to Michigan's Children's Special Health Care Services Program 

26. 

Questions and Answers: Dept. of Human Services  pamphlet

10.

Family Support Network pamphlet

27.

Healthy Kids 
pamphlet

11.

Family-to-Family Health Information and Education Center 

28. 

Center for Education Networking     (website) 

12. 

Genetics and Young Children with Hearing Loss   pamphlet 

29. 

CSHCS Insurance Premium Payment Benefit   pamphlet 

13. 

  Guide-By-Your-Side  pamphlet 

 30 

Family History and Your Health Fact Card    

14. 

Hands and Voices   pamphlet 

 31. 

Michigan Diaper and Incontinence Supplies Program 

15. 

Helping Young People Succeed in School  Project Find pamphlet (also in   Spanish  Arabic )   

 32. 

A Family Guide to Respite for Children in Michigan 

16. 

Michigan Genetic Counseling Services pamphlet 

 33. 

Special Olympics   brochure  

17. 

Michigan Genetic Support Group Directory 

Resource and Referral Information for Providers 

1.

A Guide to Genetics Referral pamphlet

15.

Order forms: 
MiGenetics Connection,  
Watch Me Grow,
Early on and Project Find
Family to Family & Education Center Materials
Early Hearing, Detection and Intervention Program

2.

Babies with Birth Defects: A Referral Guide for Michigan Hospitals booklet with sample form 

16.

Top 20 Resource and Referral pocket card 

3.

Children's Special Health Care Services local office contacts (also online at www.michigan.gov/mdch, then search "CSHCS Provider Information")

17.

Translation and Interpreter Services listing 

4.

CSHCS Medical Eligibility Report Form 

18. 

Web-based Training online at  training.mihealth.org  
Birth Defects Registry Reporting;
 Newborn Screening;  What is Children's Special Health Care Services? 

5. 

Community Mental Health Service Programs 

19. 

Early On®  Guide for Physicians 

6. 

Early On® Coordinators listing by county 

20. 

Medical Home Resources 

7. 

Early On®/Project Find (website) 

21. 

Resources on Grieving 

8. 

Early On®/ Project Find  referral fax form 

22. 

What is a Genetic Counselor? NEW! 
Online resource only!
 

9.

Hospice Care for Children with Life-Limiting Conditions fact sheet and Michigan listing

 

10.

Local Health Department Directory 

 

 

11.

MCIR pamphlet

 

 

12.

Medical Home for Children with Special Needs fact sheet

 

 

13.

MI Genetics Connection Resource Center 

 

 

14.

Michigan Directory of Service Providers for Infants, Toddlers & Students with Disabilities

  (back to top) 

Condition Fact Sheets 

Newborn Screening 

Complete list of disorders tested and fact sheets available 

Genetic Disorders 

 

22q11.2 Deletion Syndrome 

 

Noonan Syndrome 

 

Angelman Syndrome 

 

Prader-Willi Syndrome 

 

Beckwith-Wiedemann Syndrome 

 

Rett Syndrome 

 

Down Syndrome 

 

Smith-Magenis Syndrome 

 

Fragile X Syndrome 

 

Tuberous Sclerosis 

 

Klinefelter Syndrome 

 

Turner Syndrome 

 

Marfan Syndrome 

 

Williams Syndrome 

 

Neurofibromatosis  (type 1) 

  (back to top) 

Fetal Alcohol Effects 

Understanding the Effects of Prenatal Alcohol Exposure (website) 

Prevention Information 

1.

Look and Feel Your Best with Folic Acid  (pamphlet )

2.

Preconceptional Health  (resource list)

3.

Preventing Birth Defects  (pamphlet)

4.

When Mom Drinks Baby Pays Too!  (fact sheet)

5.

Substance Abuse Access Management System, Agency Directory 

6.

You Can Quit Smoking 

7.

Planning to have a baby 

8.

A Guide to a Healthy Home 

9.

The Birds and the Bees…and Diabetes NEW! 

Other 

Free and Low Cost Health Care Coverage Available to Michigan Adults, Children, Pregnant Women and Families (also available in  Spanish  and  Arabic ) 
Respite locator 

Family Guide to Respite for Children in Michigan 

The Michigan Monitor Fall 2009   (Birth Defects Newsletter) 
Family Support Subsidy Program  Brochure 
Region 4 Genetics Collaborative (website)   
Michigan Tobacco QuitLine wallet card   (website)  
The Birds and the Bees…and Diabetes  (website) NEW! 

Toolkit Updates  

 October 2008 
 February 2009 
 December 2009 
 March 2010 
 

 Contact us: Genetics@michigan.gov 

Michigan Business One Stop
Link to Department and Agencies Web Site Index
Link to Statewide Online Services Index
Link to Statewide Web-based Surveys
Link to RSS feeds available on this site
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