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NBS Legislation Act 14 (1987)
NBS Legislation Act 691 (2002)
NBS Legislation Act 31 (2006)
NBS Specimen Retention Policy
After Newborn Screening
The NBS laboratory routinely saves all newborn screening samples after testing is completed, unless otherwise directed by a parent or legal guardian. In accordance with state law, some leftover samples may be used for medical research after all directly identifying information (name, address, etc.) is removed.
Directive to remove residual NBS blood specimen from possible research uses English (Arabic)
Directive to destroy residual NBS blood specimen English (Arabic)
Questions and Support
A Newborn Screening Nurse Consultant is available to answer questions and offer support to families of infants and children who have been diagnosed with any of the NBS disorders. Call the toll free number, 1-866-673-9939, and request a return call.
Family Resources and Support
The Michigan PKU Website is a resource for families of children diagnosed with PKU and other metabolic disorders, maintained by the parent of a child with PKU.
Children's Special Health Care Services ~ Your infant or child may be eligible for benefits from this Department of Community Health Program. Their toll free family phone line is 1-800-359-3722.
The Early Hearing Detection and Intervention Program monitors the results of this hearing screen. Prior to being discharged home from the hospital, your newborn may have received a hearing screen.
Updated 08-23-2011
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