Governor Gretchen Whitmer is a lifelong Michigander. She is a lawyer, an educator, former prosecutor, State Representative and Senator. She was the first woman to lead a Senate caucus. But the most important title she boasts is MOM. Inspired by her family, she’s devoted her life to building a stronger Michigan for everyone.
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May 16, 2025
WHEREAS, Congenital disorders of glycosylation (CDGs) are a group of over 100 rare metabolic disorders that affect the body’s organs and nervous system, leaving children, adolescents and adults impaired with significant physical and developmental disability; and,
WHEREAS, CDGs are often under-diagnosed and misdiagnosed with only approximately 1,800 cases diagnosed globally, and 350 cases currently reported in the United States; and,
WHEREAS, lack of awareness and knowledge of CDGs contributes to under-diagnosis and difficulties in accessing specialized services, proper care, and support; and,
WHEREAS, early diagnosis of CDGs is important to ensure timely management of clinical complications, appropriate medical monitoring, genetic counseling, and when available, disease specific treatment;
NOW, THEREFORE, I, Gretchen Whitmer, governor of Michigan, do hereby proclaim May 16, 2025 as Congenital Disorders of Glycosylation (CDG) Awareness Day in Michigan.