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September 8, 2026: Lissencephaly Awareness Day
September 08, 2026
WHEREAS; Lissencephaly is a rare gene-linked brain malformation, causing the brain to have less or no ridges & folds; making it appear smooth. It is estimated about 1 in 100,000 individuals are born with this condition; and,
WHEREAS; people living with this condition may also suffer from hypertonia, epilepsy, swallowing disorders, developmental delays, and more; and,
WHEREAS; addressing the complex medical needs early in life is imperative to helping families successfully care for their children at home. The need for more education, awareness & support for families is desperately needed; and,
WHEREAS; It is appropriate that one day each year should be set apart from the rest and be known as Lissencephaly Awareness Day, this day shall be on September 8th; and,
WHEREAS; Lissencephaly Foundation Inc; a nonprofit charitable organization wants to help support these individuals through our continued efforts of empowering families and educating communities;
NOW, THEREFORE, I, Gretchen Whitmer, governor of Michigan, do hereby proclaim September 8th, to be known in Michigan as Lissencephaly Awareness Day, and urge our citizens, patients, caregivers, medical professionals and all agencies and organizations interested in supporting these families to unite on that day in observance of such exercises.