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September 18, 2026: Pitt Hopkins Syndrome Awareness Day

WHEREAS, Pitt Hopkins Syndrome is a rare and severe neurological disorder caused by a spontaneous mutation or deletion on the 18th chromosome; and,

WHEREAS, Pitt Hopkins Syndrome is characterized by developmental delays, intellectual disability, breathing problems, seizures, gastrointestinal issues and distinctive facial features; and,

WHEREAS, approximately 1,800+ people worldwide have been diagnosed with Pitt Hopkins Syndrome, and,

WHEREAS, The Pitt Hopkins Research Foundation annually celebrates September 18th as International Pitt Hopkins Syndrome Awareness Day to raise awareness and funding for Pitt Hopkins research, and this date was chosen to bring attention to the fact that it is a disorder occurring on the 18th chromosome; and,

WHEREAS, The Pitt Hopkins Research Foundation is dedicated to finding a cure for Pitt Hopkins Syndrome through research, education and advocacy;

NOW, THEREFORE, I, Gretchen Whitmer, Governor of the State of Michigan, hereby proclaim September 18, 2026 as "Pitt Hopkins Syndrome Awareness Day" and encourage all citizens to increase awareness and understanding of Pitt Hopkins Syndrome.