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April 16, 2019: 4P/Wolf-Hirschhorn Syndrome Awareness Day
April 16, 2019
WHEREAS, the good health and general well-being of the people of Michigan is strengthened by our awareness and understanding of a genetic disorder known as 4p- syndrome, with Wolf-Hirschhorn as the main syndrome; and,
WHEREAS, children with 4p- syndrome are usually born with low birth weight and develop slowly, both cognitively and physically, compared to their same-age peers, and experience medical complications while still maintaining pleasant and lovable personalities; and,
WHEREAS, dedicated professionals are presently involved in valuable research to explore new therapies and diagnostic tools, and to offer hope to persons with 4p- syndrome; and,
WHEREAS, the 4p- Support Group estimates that approximately 1,000 individuals in the United States have 4p- syndrome, though it is thought that many remain undiagnosed; and,
WHEREAS, it is incumbent upon the citizens of Michigan to work together as a people and as a state to increase research into understanding the syndrome, to advocate for effective diagnostic screenings, to support the development of improved therapies for early intervention and other necessary and critical treatments, as well as join in recognizing and applauding the valuable role which families and advocates of those who have 4p- syndrome play in helping our medical community to advance the knowledge and awareness of this syndrome; and,
WHEREAS, the state of Michigan is pleased to join people throughout our nation in promoting a special celebration which seeks to raise awareness of 4p- syndrome, designed to have a positive and productive impact on the lives of all people with 4p- syndrome and their caregivers;
NOW, THEREFORE, I, Gretchen Whitmer, governor of Michigan, do hereby proclaim April 16, 2019, as 4P/Wolf-Hirschhorn Syndrome Awareness Day in Michigan.