June 19, 2023: Sickle Cell Awareness Day

WHEREAS, sickle cell disease is the most common inherited blood disorder in the United States, affecting approximately 100,000 Americans and millions around the world. It is estimated that about 3,500 Michigan residents have sickle cell disease; and, 

WHEREAS, sickle cell disease is a genetic condition that is present at birth, inherited when a child receives two sickle cell genes – one from each parent. Michigan’s Newborn Screening Program identifies about 60 newborns with sickle cell disease and 2,700 newborns with sickle cell trait each year; and, 

WHEREAS, this condition has long been associated with people of African descent; however, it can be found in many races and ethnic groups, including Middle Eastern, Latino, Asian, Mediterranean descent, and Caucasian people; and,  

WHEREAS, sickle cell causes changes in red blood cells; normal red blood cells are disc shaped, flexible, and move easily through the blood vessels; for individuals with sickle cell disease, red blood cells are crescent, or “sickle” shaped. These cells do not bend or move easily and can block blood flow to the rest of the body. These blockages lead to debilitating pain, damage to organs, and life-threatening complications causing increased morbidity and early mortality; and, 

WHEREAS, the life expectancy of individuals with sickle cell disease is decades shorter compared to those without sickle cell disease, primarily owing to early mortality during adulthood. Early screening for sickle cell disease coupled with antibiotic prophylaxis by 3 months of age, immunizations, disease modifying therapies, and routine medical care are recommended; and,   

WHEREAS, timely and appropriate treatment of acute illness is critical because life-threatening complications can develop rapidly. It is essential that every individual with sickle cell disease receive comprehensive care that is coordinated through a medical home with appropriate expertise; and,

WHEREAS, Michigan remains dedicated to the provision of sickle cell screening, education, and medical care for individuals and families living with sickle cell disease; and,

WHEREAS, on this day, we unite to increase public knowledge and an understanding of sickle cell disease in Michigan;  

NOW, THEREFORE, I, Gretchen Whitmer, governor of Michigan, do hereby proclaim June 19, 2023, as Sickle Cell Awareness Day in Michigan.