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June 30, 2023: Arthrogryposis Awareness Day
June 30, 2023
WHEREAS, Arthrogryposis multiplex congenita (AMC) means more than three joint contractures in two areas of the body prior to birth, and any joint can be involved; and,
WHEREAS, a joint contracture is a joint that lacks normal range of motion, or in other words, the joints are stiff and stuck; and,
WHEREAS, this condition occurs in 1 in 3,000 live births and is a non-progressive condition, although contractures can recur after treatment; and,
WHEREAS, there are approximately 400 types of arthrogryposis, with about 43% of diagnoses being the amyoplasia type; and,
WHEREAS, 20-30% of babies born with AMC will die in the newborn period because of lethal genetic types or severe central nervous system dysfunction; and,
WHEREAS, common joint contractures include clubbed feet or vertical talus, extended or flexed knees, dislocated and/or externally rotated hips, internally rotated shoulders, extended or flexed elbows, flexed wrists, adducted thumbs, and fingers fisted or extended; and,
WHEREAS, treatment often includes stretching the joints multiple times per day; serial casting; physical, occupational, and speech therapy; splinting and bracing; tendon releases and lengthening; osteotomies; and external fixators; and,
WHEREAS, there is no cure for AMC, but regular treatment can improve range of motion and foster independence; and,
WHEREAS, more research is needed to identify the causes of AMC and improve treatment and outcomes;
NOW, THEREFORE, I, Gretchen Whitmer, governor of Michigan, do hereby proclaim June 30, 2023, as Arthrogryposis Awareness Day in Michigan.