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May 16, 2024: Tarlov Cyst Disease Awareness Day

WHEREAS, Tarlov cyst disease is a rare disease in which cerebrospinal fluid-filled sacs form in the nerve roots of the spine, most commonly at the base; and,

WHEREAS, Tarlov cysts may be small and asymptomatic, but as they grow they can compress nerves resulting in chronic pain, numbness, altered sensation, and in severe cases, leg weakness, loss of bladder or bowel control, and neurological damage; and,

WHEREAS, individuals with underlying connective tissue disorders are more likely to be diagnosed with Tarlov cyst disease; and,

WHEREAS, symptoms of Tarlov cyst disease often overlap with other medical conditions which makes misdiagnosis or delayed diagnosis more likely; and,  

WHEREAS, treatment for Tarlov cyst disease is focused on controlling symptoms, with some patients finding long-term relief through surgical intervention; and,

WHEREAS, additional research is needed to better understand the underlying mechanisms of the disease and to develop more effective and less invasive treatment options; and, 

NOW, THEREFORE, I, Gretchen Whitmer, governor of Michigan, do hereby proclaim May 16, 2024, as Tarlov Cyst Disease Awareness Day in Michigan.