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February 2023: Marfan Syndrome Awareness Month

WHEREAS, Marfan syndrome is a life-threatening genetic connective tissue condition that can involve many parts of the body including the heart, blood vessels, eyes, lungs, bones and joints; demonstrated by varying degrees of disability, pain, muscular skeletal issues, often resulting in a lifelong series of multi-system health-related illnesses; and,

WHEREAS, it is estimated that 1 in 5,000 individuals worldwide are born with Marfan syndrome, regardless of race, gender, ethnicity; and,

WHEREAS, the number and severity of symptoms associated with Marfan syndrome differ greatly among individuals even among members of the same family; and,

WHEREAS, all expressions of Marfan syndrome are life-long, incurable, and potentially debilitating. Because it is a life-threatening genetic condition, timely diagnosis and treatment is essential; and,

WHEREAS, Marfan syndrome is often misdiagnosed and may be an under-diagnosed condition; and,

WHEREAS, through public awareness, the State of Michigan seeks to raise awareness of Marfan syndrome in order to properly diagnose and treat individuals affected by this condition;

NOW, THEREFORE, I, Gretchen Whitmer, Governor of Michigan, do hereby proclaim February 2023 as Marfan Syndrome Awareness Month in Michigan.