July 22, 2025: Fragile X Awareness Day

WHEREAS, Fragile X syndrome (FXS) is the most common inherited cause of intellectual disabilities and autism worldwide, affecting people of every race, income level, and nationality; and,

WHEREAS, although the genetic mutation that causes FXS is identifiable through DNA testing, Fragile X frequently goes undiagnosed due to limited awareness, even within the medical community; and,

WHEREAS, more than 100,000 Americans live with FXS, and an estimated 1.5 million are carriers of the Fragile X gene mutation; and,

WHEREAS, FRAXA Research Foundation, founded by parents in 1994, has helped lead the charge to find effective treatments and ultimately a cure through targeted research and clinical trials; and,

WHEREAS, with concerted research efforts, effective treatments and ultimately a cure for FXS may be developed; and,

WHEREAS, Fragile X serves as a powerful model for understanding a broad range of neurodevelopmental disorders, including autism and similar conditions such as Alzheimer’s, Parkinson’s, and other genetically-based medical conditions, advancing research that benefits millions; and,

WHEREAS, raising awareness of Fragile X with the public and the medical community will help individuals with the Fragile X gene mutation make better informed medical decisions and help those living with Fragile X syndrome to adapt into society and provide significant contributions toward a better understanding of autism and other Fragile X-associated conditions; and,

WHEREAS, July 22 is recognized globally as World Fragile X Day, with landmarks, buildings, and bridges lighting up in teal to raise awareness and unite the Fragile X community in hope and support;

NOW, THEREFORE, I, Gretchen Whitmer, governor of Michigan, do hereby proclaim July 22, 2025 as Fragile X Awareness Day in Michigan.