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AG Nessel Joins Coalition of 24 States in Support of Stronger Federal Protections for Reproductive Health Data Privacy
June 21, 2023
LANSING – Michigan Attorney General Dana Nessel today joined a coalition of 24 states in a comment letter, led by California and New York, supporting stronger protections for patients’ reproductive health information. The Biden Administration is considering adding amendments to the Health Insurance Portability and Accountability Act (HIPAA) Privacy Rule, the federal law that governs the disclosure of protected health information (PHI). If implemented, the changes would make it illegal to share a patient’s PHI if the PHI is being sought for certain criminal, civil, and administrative investigations and proceedings against a patient in connection with a legal abortion or other reproductive care. This is especially important as the U.S. Supreme Court decision overturning Roe v. Wade spurred many anti-abortion states to enforce draconian restrictions that could lead to criminal or civil penalties for anyone seeking, providing, or assisting with reproductive care. The coalition of attorneys general today issued a letter, welcoming the federal government’s proposed HIPAA amendments and adding that the additional guardrails would help safeguard reproductive health data from being wrongfully accessed and exploited to harm pregnant people or healthcare providers.
“The proposed amendments to the Health Insurance Portability and Accountability Act (HIPAA) Privacy Rule will protect patients and prevent their health information from being weaponized in states where harsh abortion laws still exist," Nessel said. "I’m proud to join my colleagues in supporting these added protections to help ensure that a patient’s private health information remains private.”
The Dobbs v. Jackson Women’s Health Organization decision overturned Roe v. Wade in June 2022, and created a climate of uncertainty and fear among reproductive health care seekers and providers throughout the country. Fifteen states currently have laws in effect prohibiting abortion under all or most circumstances. Everyone involved in assisting, providing, and obtaining such care in those states may be at risk of investigation, civil liability, and criminal prosecution.
In the letter today, the coalition of attorneys general welcomed the proposed HIPAA amendments, which aim to protect against such misuse and weaponization of people’s data. The amendments would prohibit the use or disclosure of PHI for an investigation into a patient in connection with seeking, obtaining, providing, or facilitating reproductive healthcare if:
- The patient seeking reproductive healthcare is in a state where such care is lawful; or
- The patient is seeking reproductive healthcare that is protected under federal law (for example, by the Emergency Medical Treatment & Labor Act), regardless of the state.
The coalition argues that these provisions are essential to begin creating a more unified privacy landscape for access to reproductive care and urged the Biden Administration to adopt the provisions speedily. The attorneys general also called for the creation of a nationally available, online platform that provides accurate and clear information on reproductive care and privacy rights, and a public awareness campaign to promote the website.
In filing today’s letter, AG Nessel joined the attorneys general of Arizona, California, Colorado, Connecticut, Delaware, the District of Columbia, Hawaii, Illinois, Maine, Maryland, Massachusetts, Minnesota, Nevada, New Jersey, New York, New Mexico, North Carolina, Oregon, Pennsylvania, Rhode Island, Vermont, Washington, and Wisconsin.
A copy of today’s comment letter to the Biden Administration can be found here.