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Critical Congenital Heart Disease
Because Every Baby Deserves a Healthy Start
Congenital heart defects are the most common group of birth defects, affecting 9 in 1000 newborns. Critical congenital heart diseases (CCHD) are those requiring surgery or catheter intervention in the first year of life. CCHDs remain one of the most significant causes of infant death in the United States.
Newborn Pulse Oximetry Screening for CCHD
Effective April 1, 2014, the Michigan Department of Health and Human Services (MDHHS) has implemented statewide screening of all Michigan newborns for critical congenital heart disease using pulse oximetry prior to hospital discharge. The Newborn Screening Program and the CCHD Advisory Committee recommend that newborns be screened prior to hospital discharge, as close to 24 hours of age as possible, using the approved MDHHS CCHD Screening Algorithm.
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CCHD News & Updates
News & Updates
MI CCHD Annual Report - 2022 - NEW!
MI CCHD Annual Report - 2021
-MI CCHD Annual Report - 2020
MI CCHD Annual Report - 2019
MI CCHD Annual Report - 2018
MI CCHD Screening Mandate Status
Screening for critical congenital heart disease (CCHD) using pulse oximetry has been added to the mandated newborn screening panel in Michigan. As of April 1, 2014 screening is required for all newborns.
CCHD Screening- DATA REPORTING
As of April 1, 2014, hospitals are required to electronically submit CCHD screening data to the Michigan Newborn Screening Program.
Data Reporting through HL7 Messaging
Newborn Screening HL7 Implementation Guide
If your hospital is interested in HL7 messaging, contact Michigan Newborn Screening Follow-up Program by email: newbornscreening@michigan.gov or toll free call at 1-866-673-9939.
For additional information on data reporting contact Kristen ThompsonNational Recommendations
- AAP May 2016 "Lessons Learned from Screening for CCHD"
- FDA Clearance Guide for Pulse Oximetry Equipment Use in Neonates July 19, 2007
- FDA Module Instructions - HHS Secretary Sebelius' letter on adding CCHD to the Recommended Uniform Screening Panel September 21, 2011
- Strategies for Implementing Screening for Critical Congenital Heart Disease PEDIATRICS Vol. 128 No. 5 November 1, 2011
- Endorsement of Health and Human Services Recommendation for Pulse Oximetry Screening for Critical Congenital Heart Disease PEDIATRICS Vol. 129 No. 1 January 1, 2012
- Implementing Recommended Screening for Critical Congenital Heart Disease PEDIATRICS DOI: 10.1542 June 17, 2013
- AAP Newborn Screening for CCHD- Resources for Primary Care Providers
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Provider ResourcesProvider Resources
CCHD Provider Training Materials
- CCHD Screening Guide for Hospitals
- CCHD Screening Algorithm
- CCHD Screening Algorithm-NICU
- Guidelines for Implementing CCHD Screening Tool-kit
- Suggested Resources for Providers
- Provider General Information Brochure
- Follow-up Worksheet-Failed Screen
- Pulse Ox Screening Visual Aid
Printable Parent Handouts-- *PARENT EDUCATIONAL MATERIALS AVAILABLE*
CCHD Parent Education Materials can now be ordered online here
- CCHD Parent Factsheet (Arabic, Spanish)
- Guide for Parents - Low Pulse Ox (Arabic, Spanish)
- Suggested Resources for Families
Federal & State Public Health
Technical Assistance
- HHS Secretary Sebelius' letter on adding CCHD to the Recommended Uniform Screening Panel September 21, 2011
- Strategies for Implementing Screening for Critical Congenital Heart Disease PEDIATRICS Vol. 128 No. 5 November 1, 2011
- FDA Clearance Guide for Pulse Oximetry Equipment Use in Neonates
FDA Pulse Ox Module Instructions - AAP Resources for Primary Care Providers
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Home Birth Resources
- Home Birth Resources
Screening for critical congenital heart disease (CCHD) using pulse oximetry has been added to the mandated newborn screening panel in Michigan. As of April 1, 2014, screening is required for all newborns.
Pulse Oximetry Loan Program
The Michigan Department of Health and Human Services (MDHHS) is pleased to offer midwives in Michigan an opportunity to obtain pulse oximetry equipment for CCHD screening as part of a loan program. The purpose of the Pulse Oximetry Equipment Loan Program for Out-of-Hospital birth attendants (midwives) is to make screening for CCHD available to all newborns in Michigan.
If you are interested please complete the application and agreement and return it (via email, fax, or mail) LOAN APPLICATION & AGREEMENT
Email: newbornscreening@michigan.gov
Fax: 517-335-9790
Mail: 333 S. Grand Ave.
PO Box 30195
Lansing, MI 48909
CCHD Data Reporting for Homebirths
CCHD Screening data reporting can be done in the homebirth community using one of the following methods:
- CCHD Data Reporting Form for Homebirths (Download Form)
This paper form can be submitted by mail or fax. To request blank forms be sent to you by mail please call 1.866.673.9939 - Online eReports Module (Download User Guide)
This online reporting system requires a secure log-in. Birth attendants will be able to sign into the module and enter individual screening results. For more information on eReports or to request access please call 1.866.673.9939.
CCHD Educational Materials
- CCHD Screening Algorithm
- CCHD Screening- Homebirths Implementation Guide (Tool-kit)
- Failed Screen-Follow Up Algorithm
- Failed Screen- Letter for Parents (ER)
- Suggested Resources for Providers
- Provider General Information Brochure
- Pulse Ox Screening Visual Aid
Printable Parent Handouts
CCHD Parent Education Materials can now be ordered online here
- CCHD Parent General Information Brochure (Arabic, Spanish)
- CCHD Parent Factsheet (Arabic, Spanish)
- Guide for Parents - Low Pulse Ox (Arabic, Spanish)
- Suggested Resources for Families
Federal & State Public Health
Technical Assistance
- AAP Statement on Homebirths
- FDA Clearance Guide for Pulse Oximetry Equipment Use in Neonates
- FDA Pulse Ox Module Instructions
Other Resources
For additional information or printed materials, email newbornscreening@michigan.gov or call 517-335-4181.
Updated 01/25/2023
- Home Birth Resources
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Family Resources
- Parent Resources
Printable Handouts
- CCHD Parent Factsheet (Arabic, Spanish)
- Suggested Resources for Families
- Guide for Parents - Low Pulse Ox (Arabic, Spanish)
Online Education Tools
- Baby's First Test- Parent Education Video (Available in 6 languages)
- Cincinnati Children's Hospital Disorders Overview
Additional Information and Support
- Parent Resources
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MDHHS* CCHD Team Members
Kristen Thompson, MPH (CCHD Team Lead)
Newborn Screening Program Coordinator
517-284-4992
thompsonk23@michigan.govAmy Rakowski, MS
Pediatric Genomics Epidemiologist
517-284-4233
rakowskia@michigan.govShelby Heppe, MPH
Newborn Screening Follow-up Section Manager
517-335-9296
heppes@michigan.gov*Michigan Department of Health and Human Services, Lifecourse Epidemiology & Genomics Division