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About the Project
Statewide Quality Improvement (QI) Network
Clinic teams participate in webinars and meetings to share best practices, learn about innovative strategies, and identify where improvements can be made in their practices. This network of clinics is working together to incorporate strategies to support their patients and families such as:
- Assisting patients with health care transition to adult providers
- Improving communication and co-management between primary care providers and specialists
- Using telehealth to expand care to patients
- Increasing use of shared decision-making with patients
Families are involved at all levels of the project:
- Parent and youth consultants are part of the Project Advisory Group and Leadership Team and share perspectives on their health care experiences.
- Clinic teams includes a parent representative who participates in trainings, meetings, and project planning.
- Parent Mentoring is offered through the Family Center to support and connect parents with similar experiences.
- Feedback is gathered from families at meetings, on team calls, and through surveys.
Outreach and Education
The Epilepsy Foundation of Michigan is the project's lead outreach and education partner. Trainings and outreach activities are customized for audiences such as school staff, health care personnel, first responders, families, and the general public.
Michigan's Children's Special Health Care Services (CSHCS) partners with the following organizations:
Epilepsy Centers/Clinics:Children's Hospital of Michigan
Detroit Medical Center Neurology Clinic
Trinity Health (adult)
MSU Neurology Clinic (pediatrics and adult)
UPHS: Marquette Hospital Neurology Clinic (pediatrics)
Primary Care Practices:
MSU (CHM) Child Health Care Clinic
Community and Statewide Partners:
Family Center for Children and Youth with Special Health Care Needs (CYSHCN)
Epilepsy Foundation of Michigan (EFM)
Michigan Chapter of the American Academy of Pediatrics (MIAAP)
Michigan Primary Care Association (MPCA)
Michigan Public Health Institute (MPHI)
Patient and Family Partnerships, Inc.
University of Michigan CHEAR (Child Health Evaluation & Research Unit)
This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number H98MC26257, Awareness and Access to Care for Children and Youth with Epilepsy, in the amount of $416,000. The contents are those of the author and do not necessarily represent the official views of, nor an endorsement, by HRSA, HHS or the U.S. Government.