The web Browser you are currently using is unsupported, and some features of this site may not work as intended. Please update to a modern browser such as Chrome, Firefox or Edge to experience all features Michigan.gov has to offer.
MI-RDAC Members
Who We Are
The MI-RDAC is composed of up to 18 members, each bringing balanced and diverse perspectives to help drive evidence-based solutions to the challenges faced by Michigan’s rare disease community.
MI-RDAC membership applications are now closed and will re-open in 2027. For information on how to apply, please see our MI-RDAC Membership Application Information sheet.MI-RDAC Council Members
Elizabeth Ames, MD, PhD | Physician |
Katie R. Baughman, MD, MA, FAAP | Medical Ethicist |
Laura Bonnell (Vice Chair) | Parent |
Caleb Bupp, MD, FACMG | Physician |
Michael Chesney | Parent |
Sean Doerr | Individual with Rare Disease |
Donna Hanson-Spencer, MBA, PACS | Individual with Rare Disease |
Tyler James, PhD, MCHES | Epidemiologist |
Susan Lerch | Patient Organization Representative |
Kelly Keener, MS, CGC | Genetic Counselor |
Kristen Kingzett, MD | Individual with Rare Disease |
Marissa Penrod | Patient Organization Representative |
Stephen Rapundalo, PHD (Chair) | Biopharmaceutical Industry Representative |
Daniel Vogt, Ph.D. | Rare Disease Researcher |
Michelle Whalen, RN, DNP, NNP-BC, CNE |
Nurse |
Jonathan Hawayek, MBA | National Pharmaceutical Industry Representative |
MDHHS Staff
Dominic Smith, MSA (Manager, Public Health Genomics Section)
Amber M. Abram, MS, MPH (Coordinator, MI-RDAC)
Kerri-Lynn Lockwood, MS, CGC (NBS Genetics Specialist)