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MI-RDAC Members
Who We Are
The MI-RDAC consists of up to 18 individuals, representing balanced and diverse perspectives that help ensure the greatest impact toward evidence-based solutions to challenges in the rare disease community.
The Council
Elizabeth Ames, MD, PhD | Physician |
Katie R. Baughman, MD, MA, FAAP | Medical Ethicist |
Laura Bonnell (Vice Chair) | Parent |
Caleb Bupp, MD, FACMG | Physician |
Michael Chesney | Parent |
Sean Doerr | Individual with Rare Disease |
Donna Hanson-Spencer, MBA, PACS | Individual with Rare Disease |
Tyler James, PhD, MCHES | Epidemiologist |
Susan Lerch | Patient Organization Representative |
Kelly Keener, MS, CGC | Genetic Counselor |
Kristen Kingzett, MD | Individual with Rare Disease |
Marissa Penrod | Patient Organization Representative |
Stephen Rapundalo, PHD (Chair) | Biopharmaceutical Industry Representative |
Daniel Vogt, Ph.D. | Rare Disease Researcher |
Michelle Whalen, RN, DNP, NNP-BC, CNE | Nurse |
MDHHS Staff
Dominic Smith, MSA (Manager, Public Health Genomics Section)
Maricar Macalincag, MS (Coordinator, MI-RDAC)
Kerri-Lynn Lockwood, MS, CGC (NBS Genetics Specialist)