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MI-RDAC Members
Who We Are
The MI-RDAC is composed of up to 18 members, each bringing balanced and diverse perspectives to help drive evidence-based solutions to the challenges faced by Michigan’s rare disease community.
MI-RDAC membership applications are now closed and will re-open in 2027. For information on how to apply, please see our MI-RDAC Membership Application Information sheet.
MI-RDAC Council Members
- Elizabeth Ames, MD, PhD - Physician
- Katie R. Baughman, MD, MA, FAAP - Medical Ethicist
- Laura Bonnell (Vice Chair) - Parent
- Caleb Bupp, MD, FACMG - Physician
- Michael Chesney - Parent
- Sean Doerr, BFA, MPA, EMT-B - Individual with Rare Disease
- Donna Hanson-Spencer, MBA, PACS - Individual with Rare Disease
- Tyler James, PhD, MCHES - Epidemiologist
- Susan Lerch - Patient Organization Representative
- Kelly Keener, MS, CGC - Genetic Counselor
- Kristen Kingzett, MD - Individual with Rare Disease
- Marissa Penrod - Patient Organization Representative
- Stephen Rapundalo, PhD (Chair) - Biopharmaceutical Industry Representative
- Daniel Vogt, PhD - Rare Disease Researcher
- Michelle Whalen, RN, DNP, NNP-BC, CNE - Nurse
- Jonathan Hawayek, MBA - National Pharmaceutical Industry Representative
- Roland A. Cruickshank, MHA, MPA, FACHE - Hospital Administrator
- Gregory A. Scherle, MD, MS - Health Insurer Representative
MDHHS Staff
- Dominic Smith, MSA - Manager, Public Health Genomics Section
- Amber M. Abram, MS, MPH - Coordinator, MI-RDAC
- Kerri-Lynn Lockwood, MS, CGC - NBS Genetics Specialist