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MI-RDAC Members

Who We Are

The MI-RDAC is composed of up to 18 members, each bringing balanced and diverse perspectives to help drive evidence-based solutions to the challenges faced by Michigan’s rare disease community.

MI-RDAC membership applications are now closed and will re-open in 2027. For information on how to apply, please see our MI-RDAC Membership Application Information sheet.

 

MI-RDAC Council Members

Elizabeth Ames, MD, PhD Physician
Katie R. Baughman, MD, MA, FAAP Medical Ethicist
Laura Bonnell (Vice Chair) Parent
Caleb Bupp, MD, FACMG Physician
Michael Chesney Parent
Sean Doerr Individual with Rare Disease
Donna Hanson-Spencer, MBA, PACS Individual with Rare Disease
Tyler James, PhD, MCHES Epidemiologist
Susan Lerch Patient Organization Representative
Kelly Keener, MS, CGC Genetic Counselor
Kristen Kingzett, MD Individual with Rare Disease
Marissa Penrod Patient Organization Representative
Stephen Rapundalo, PHD (Chair) Biopharmaceutical Industry Representative
Daniel Vogt, Ph.D. Rare Disease Researcher
Michelle Whalen, RN, DNP, NNP-BC, CNE

Nurse

Jonathan Hawayek, MBA National Pharmaceutical Industry Representative

 

MDHHS Staff

Dominic Smith, MSA (Manager, Public Health Genomics Section)

Amber M. Abram, MS, MPH (Coordinator, MI-RDAC)

Kerri-Lynn Lockwood, MS, CGC (NBS Genetics Specialist)