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Michigan Rare Disease Advisory Council

Michigan Rare Disease Advisory Council (MI-RDAC)

The Michigan Department of Health and Human Services (MDHHS) is working to establish the Michigan Rare Disease Advisory Council (MI-RDAC) to support the rare disease community in the state. A rare disease is a condition that affects fewer than 200,000 people in the United States. There are more than 7,000 known rare diseases.

The MI-RDAC will serve as an advisory body that provides Michigan's rare disease community with a stronger voice in state government. Nationwide, 25 states have established RDACs, with others in various stages of the process. The responsibilities of the MI-RDAC include 1) providing information about rare diseases through a publicly available website, and 2) in collaboration with MDHHS, investigating and reporting to the state legislature about at least one rare disease per year. Meetings will be held quarterly, with virtual access available.

Announcements

Applications to serve on the council are being accepted through April 5, 2024. For more information about the application process,
visit the MI-RDAC Members page.