Michigan Rare Disease Advisory Council

Michigan Rare Disease Advisory Council (MI-RDAC)

The Michigan Department of Health and Human Services (MDHHS) has established the Michigan Rare Disease Advisory Council (MI-RDAC) to support the rare disease community in the state. A rare disease is a condition that affects fewer than 200,000 people in the United States. There are more than 7,000 known rare diseases.

The MI-RDAC serves as an advisory body that provides Michigan's rare disease community with a stronger voice in state government. The responsibilities of the MI-RDAC include 1) providing information about rare diseases through a publicly available website, and 2) in collaboration with MDHHS, investigating and reporting annually to the state legislature on the activities of the MI-RDAC addressing issues impacting the rare disease community. Meetings will be held quarterly, with virtual access available.

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