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MI-RDAC Meetings
The MI-Rare Disease Advisory Council will meet quarterly. Meetings will be open to the public. Email MDHHS-RareDiseases@michigan.gov for the link to join the meeting.
Upcoming meetings
Date |
Time | Location | Meeting Details |
April 30, 2025 | 10:00 a.m. - 12:00 noon | TBD | Email MDHHS-RareDiseases@michigan.gov on how to join. Public Comments: Michigan Rare Disease Advisory Council's 2025 Initiatives and Priorities |
July 23, 2025 | 10:00 a.m. - 12:00 noon | TBD | |
October 8, 2025 | 10:00 a.m. - 12:00 noon | TBD |
Past Meetings
October 8, 2024: Meeting minutes. The recording may be viewed here: MI-RDAC October 8, 2024 Meeting
Agenda:
- Introduction of Council Members
- National Organization for Rare Disorders: Project RDAC
- Overview of Michigan Bill Proposal
- MDHHS Activities and Funding
- MI-RDAC Leadership: Chair & Vice Chair
- Council Policies and Procedures
- Workplan and Implementation
- Public Comments
January 22, 2025. The recording may be viewed here: MI-RDAC January 22, 2025 Meeting
Agenda:
- Legislation updates
- Presentation: Newborn Screening Overview
- Member applications
- Policies and procedures
- 2025 Priorities
- Public comments: "Perspectives on Challenges and Possible Solutions for Accessing Care for Rare Patients."