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MI-RDAC Meetings

The MI-Rare Disease Advisory Council will meet quarterly. Meetings will be open to the public. Please email MDHHS-RareDiseases@michigan.gov for more information.

Upcoming meetings

Date

Time Location Meeting Details
July 23, 2025 10:00am - 12:00 noon Virtual

Email MDHHS-RareDiseases@michigan.gov for the meeting link.

Public Comments: TBD

October 8, 2025 10:00am - 12:00 noon Virtual

 

Past Meetings

April 30, 2025: The recording may be viewed here: MI-RDAC April 30, 2025 Meeting
Agenda:

  • Personnel Updates
  • Member Applications
  • Legislation Updates
  • Policies and Procedures
  • 2025 Priorities
  • Public Comments: "Michigan Rare Disease Advisory Council's 2025 Initiatives and Priorities".

January 22, 2025: Meeting Minutes. The recording may be viewed here: MI-RDAC January 22, 2025 Meeting
Agenda:

  • Legislation Updates
  • Presentation: Newborn Screening Overview
  • Member Applications
  • Policies and Procedures
  • 2025 Priorities
  • Public Comments: "Perspectives on Challenges and Possible Solutions for Accessing Care for Rare Patients."

October 8, 2024: Meeting Minutes. The recording may be viewed here: MI-RDAC October 8, 2024 Meeting
Agenda:

  • Introduction of Council Members
  • National Organization for Rare Disorders: Project RDAC
  • Overview of Michigan Bill Proposal
  • MDHHS Activities and Funding
  • MI-RDAC Leadership: Chair & Vice Chair
  • Council Policies and Procedures
  • Workplan and Implementation
  • Public Comments