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MI-RDAC Meetings
The Michigan Rare Disease Advisory Council will meet quarterly. Meetings are open to the public.
2026 Upcoming meetings
|
Date |
Time | Location | Meeting Details |
| Friday, January 23, 2026 | 10:00am - 12:00 noon | Virtual |
To receive the meeting link and be added to our public listserv for future meeting notifications, or to submit a public comment please email MDHHS-RareDiseases@michigan.gov. Public Comment: TBD Public Comment Guidelines: |
| Tuesday, April 28, 2026 | 10:00am - 12:00 noon | Virtual | Public Comment: TBD |
| Wednesday, July 22, 2026 | 10:00am - 12:00 noon | Virtual | Public Comment: TBD |
| Wednesday October 7, 2026 | 10:00am -12:00 noon | Virtual | Public Comment: TBD |
Past Meetings
Thank you for staying up to date with MI-RDAC!
You can find our four most recent meeting dates, meeting minutes, recording links, and agenda items listed below:
October 8, 2025: The recording may be viewed here: MI-RDAC October 8, 2025 Meeting
Agenda:
- Member Applications
- Public Comments: Input on MI-RDAC's Seven Workplan Priorities
- Workgroup Priorities and Plans
- Upcoming Activities: NORD Summit
July 23, 2025: The recording may be viewed here: MI-RDAC July 23, 2025 Meeting
Agenda:
- Member Applications
- Presentations: Insights from Other State RDACs (Pennsylvania & Minnesota)
- 2025 Priorities, Workplan, and Workgroups
- Public Comments: "The Human Impact of Medicaid Cuts on Michigan's Rare Disease Population".
April 30, 2025: Meeting Minutes and follow-up Meeting Minutes. The recording may be viewed here: MI-RDAC April 30, 2025 Meeting
Agenda:
- Personnel Updates
- Member Applications
- Legislation Updates
- Policies and Procedures
- 2025 Priorities
- Public Comments: "Michigan Rare Disease Advisory Council's 2025 Initiatives and Priorities".
January 22, 2025: Meeting Minutes. The recording may be viewed here: MI-RDAC January 22, 2025 Meeting
Agenda:
- Legislation Updates
- Presentation: Newborn Screening Overview
- Member Applications
- Policies and Procedures
- 2025 Priorities
- Public Comments: "Perspectives on Challenges and Possible Solutions for Accessing Care for Rare Patients."
If you would like information from past meetings not displayed here, please email us at MDHHS-RareDiseases@michigan.gov.