Skip to main content

MI-RDAC Meetings

The MI-Rare Disease Advisory Council will meet quarterly. Meetings will be open to the public. Email MDHHS-RareDiseases@michigan.gov for the link to join the meeting.  

Upcoming meetings

Date

Time Location Meeting Details
April 30, 2025 10:00 a.m. - 12:00 noon TBD Email MDHHS-RareDiseases@michigan.gov on how to join.
Public Comments: Michigan Rare Disease Advisory Council's 2025 Initiatives and Priorities
July 23, 2025 10:00 a.m. - 12:00 noon TBD
October 8, 2025 10:00 a.m. - 12:00 noon TBD

 

Past Meetings

October 8, 2024: Meeting minutes. The recording may be viewed here: MI-RDAC October 8, 2024 Meeting
Agenda:

  • Introduction of Council Members
  • National Organization for Rare Disorders: Project RDAC
  • Overview of Michigan Bill Proposal
  • MDHHS Activities and Funding
  • MI-RDAC Leadership: Chair & Vice Chair
  • Council Policies and Procedures
  • Workplan and Implementation
  • Public Comments

January 22, 2025. The recording may be viewed here: MI-RDAC January 22, 2025 Meeting
Agenda:

  • Legislation updates
  • Presentation: Newborn Screening Overview
  • Member applications
  • Policies and procedures
  • 2025 Priorities
  • Public comments: "Perspectives on Challenges and Possible Solutions for Accessing Care for Rare Patients."