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MI-RDAC Meetings
The MI-Rare Disease Advisory Council will meet quarterly. Meetings will be open to the public. Please email MDHHS-RareDiseases@michigan.gov for more information.
Upcoming meetings
Date |
Time | Location | Meeting Details |
July 23, 2025 | 10:00am - 12:00 noon | Virtual |
Email MDHHS-RareDiseases@michigan.gov for the meeting link. Public Comments: TBD |
October 8, 2025 | 10:00am - 12:00 noon | Virtual |
Past Meetings
April 30, 2025: The recording may be viewed here: MI-RDAC April 30, 2025 Meeting
Agenda:
- Personnel Updates
- Member Applications
- Legislation Updates
- Policies and Procedures
- 2025 Priorities
- Public Comments: "Michigan Rare Disease Advisory Council's 2025 Initiatives and Priorities".
January 22, 2025: Meeting Minutes. The recording may be viewed here: MI-RDAC January 22, 2025 Meeting
Agenda:
- Legislation Updates
- Presentation: Newborn Screening Overview
- Member Applications
- Policies and Procedures
- 2025 Priorities
- Public Comments: "Perspectives on Challenges and Possible Solutions for Accessing Care for Rare Patients."
October 8, 2024: Meeting Minutes. The recording may be viewed here: MI-RDAC October 8, 2024 Meeting
Agenda:
- Introduction of Council Members
- National Organization for Rare Disorders: Project RDAC
- Overview of Michigan Bill Proposal
- MDHHS Activities and Funding
- MI-RDAC Leadership: Chair & Vice Chair
- Council Policies and Procedures
- Workplan and Implementation
- Public Comments