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MI-RDAC Meetings

The Michigan Rare Disease Advisory Council will meet quarterly. Meetings are open to the public.

2026 Upcoming meetings

Date

Time Location Meeting Details
Friday, January 23, 2026 10:00am - 12:00 noon Virtual

To receive the meeting link and be added to our public listserv for future meeting notifications, or to submit a public comment please email MDHHS-RareDiseases@michigan.gov.

Public Comment: TBD

Public Comment Guidelines:
Members of the public are encouraged to submit comments via email prior to the meeting. Submitted comments will be read aloud during the designated public comment period. Individuals are not required to speak unless they choose to do so. Each public comment will be allotted up to two minutes during the meeting.

Tuesday, April 28, 2026 10:00am - 12:00 noon Virtual Public Comment: TBD
Wednesday, July 22, 2026 10:00am - 12:00 noon Virtual Public Comment: TBD
Wednesday October 7, 2026 10:00am -12:00 noon Virtual Public Comment: TBD

 

Past Meetings

Thank you for staying up to date with MI-RDAC!
You can find our four most recent meeting dates, meeting minutes, recording links, and agenda items listed below:

October 8, 2025: The recording may be viewed here: MI-RDAC October 8, 2025 Meeting
Agenda:

  • Member Applications
  • Public Comments: Input on MI-RDAC's Seven Workplan Priorities 
  • Workgroup Priorities and Plans
  • Upcoming Activities: NORD Summit

July 23, 2025: The recording may be viewed here: MI-RDAC July 23, 2025 Meeting
Agenda:

  • Member Applications
  • Presentations: Insights from Other State RDACs (Pennsylvania & Minnesota)
  • 2025 Priorities, Workplan, and Workgroups
  • Public Comments: "The Human Impact of Medicaid Cuts on Michigan's Rare Disease Population".

April 30, 2025: Meeting Minutes and follow-up Meeting Minutes. The recording may be viewed here: MI-RDAC April 30, 2025 Meeting
Agenda:

  • Personnel Updates
  • Member Applications
  • Legislation Updates
  • Policies and Procedures
  • 2025 Priorities
  • Public Comments: "Michigan Rare Disease Advisory Council's 2025 Initiatives and Priorities".

January 22, 2025: Meeting Minutes. The recording may be viewed here: MI-RDAC January 22, 2025 Meeting
Agenda:

  • Legislation Updates
  • Presentation: Newborn Screening Overview
  • Member Applications
  • Policies and Procedures
  • 2025 Priorities
  • Public Comments: "Perspectives on Challenges and Possible Solutions for Accessing Care for Rare Patients."

If you would like information from past meetings not displayed here, please email us at MDHHS-RareDiseases@michigan.gov.