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Overview
Due to the current medical recommendations of 'Diet for Life', changing demographic patterns and budgetary constraints, Michigan needed a multi-part solution that provides feasible options to enable patients of all ages to obtain lifelong nutritional treatment for IEM. In order to address these barriers of accessing medically necessary nutrition for individuals with IEM, the Diet for Life Work Group was formed. The Diet for Life Work Group was identified by the Lifecourse Epidemiology and Genomics Division and Children's Special Health Care Services Division as a way to bring together important stakeholders to examine the issues, learn from each other, and discuss possible solutions.
Meeting #1 October 15, 2013
Agenda
Presentations:
Work Group Rationale, Objectives and Process
Overview of Metabolic Disorders
Current Recommendations and Guidelines for Diet for Life
Diets for Individuals with PKU
Diets for Individuals with Other Metabolic Disorders
Overview of Medical Foods Definitions
Handouts:
Phenylketonuria in Michigan
Meeting #2 Focus on Adults November 18, 2013
Agenda
Presentations:
State Models for Adults
Medical food funding grid for Adults
Meeting #2 Focus on Children November 22, 2013
Agenda
Presentations:
State Models for Children
Medical food funding grid for Children
Meeting #3 January 13, 2014
Agenda
Presentations:
Review of Recommendations
Handouts:
Strategy Prioritization worksheet
Summary of recommendations from Work Group Meetings
Diet for Life Work Group Report: Proposed Strategies, 2013-2014
For more information, contact 517-335-4181 or newbornscreening@michigan.gov
Updated 7/17/2014