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Newsletters and Reports

Newsletters and Reports

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MiSCDC Newsletter

The Michigan Sickle Cell Data Collection (MiSCDC) Program gathers health information about people living with sickle cell disease in Michigan to inform policy, health care service improvements and new treatments. The MiSCDC Program is a collaboration led by the Susan B. Meister Child Health Evaluation and Research Center at the University of Michigan and the Michigan Department of Health and Human Services. In partnership with the Centers for Disease Control and Prevention funding a total of 16 states, this national effort aspires to use data to improve quality of life, life expectancy, and the health of sickle cell warriors.

More information at: www.miscdc.org.

MiSCDC Program Form

Reports and Infographics

  • Assessment Report: 2015-2018 Public Health Strategic Plan to Address Sickle Cell Disease Across the Lifespan

    A report that reflects on the Public Health Strategic Plan to Address Sickle Cell Disease Across the Lifespan, the Department’s initial framework to guide SCD efforts in Michigan. It reviews progress since implementation, noting completed activities and highlighting other key accomplishments to date.

  • Quantitative Assessment of Sickle Cell Disease in Michigan: A Report from the MiSCDC Program

    A report that shares data from the Michigan Sickle Cell Data Collection (MiSCDC) program, which gathers health information about people living with SCD in Michigan to inform policy changes, health care services improvements and new treatments. 

  • Focus Group Report: 2026 Sickle Cell Disease Strategic Plan

    In collaboration with community partners, MDHHS held six focus groups with individuals living with sickle cell disease and trait, caregivers and health care advocates across Michigan. This report centers participants’ thoughts on healthcare access, insurance, information, and medication.

  • Issue Analysis: Hematologist Survey Results & Strategic Planning Priorities for the MDHHS 2026 Sickle Cell Strategic Plan

    This document shares findings from a survey of Michigan hematologists, aimed at understanding provider perspectives on barriers to delivering quality and coordinated care for people living with SCD. Providers also identified their top priorities to guide the state’s plan to address SCD care, support and infrastructure.

  • 2026 Sickle Cell Disease Strategic Plan Infographic

  • Sickle Cell Progress in Michigan Infographic