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Sickle Cell Updates and Announcements

A Public Health Strategic Plan to Address Sickle Cell Disease Across the Lifespan 2015—2018

Review the Plan.

Released in 2015, MDHHS developed a strategic plan to address the needs of people living with SCD. The plan outlines key goals and strategies that were set forth to improve care, raise awareness, expand provider access, strengthen transition services, and enhance mental health and research efforts.

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ASSESSMENT REPORT: 2015-2018 Public Health Strategic Plan to Address Sickle Cell Disease Across the Lifespan

Review the Report.

A report that reflects on the Public Health Strategic Plan to Address Sickle Cell Disease Across the Lifespan, the Department’s initial framework to guide SCD efforts in Michigan. It reviews progress since implementation, noting completed activities and highlighting other key accomplishments to date.

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Quantitative Assessment of Sickle Cell Disease in Michigan: A Report from the MiSCDC Program

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A report that shares data from the Michigan Sickle Cell Data Collection (MiSCDC) program, which gathers health information about people living with SCD in Michigan to inform policy changes, health care services improvements and new treatments.

Learn more about the MiSCDC program by visiting miscdc.org.

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Focus Group Report: 2025 Sickle Cell Disease Strategic Plan

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In collaboration with community partners, MDHHS held six focus groups with individuals living with sickle cell disease and trait, caregivers and health care advocates across Michigan. This report centers participants’ thoughts on healthcare access, insurance, information, and medication.

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Issue Analysis: Hematologist Survey Results & Strategic Planning Priorities for the MDHHS 2025 Sickle Cell Strategic Plan

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This document shares findings from a survey of Michigan hematologists, aimed at understanding provider perspectives on barriers to delivering quality and coordinated care for people living with SCD. Providers also identified their top priorities to guide the state’s plan to address SCD care, support and infrastructure.

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Community Infographic

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A graphic summarizing a decade of progress in SCD efforts across Michigan.