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Frequently Asked Questions
We asked people what information they thought would be most helpful to others who were seeking more information or were newly diagnosed with cancer. This page presents answers to the questions they thought would be most pertinent to patients, survivors, and their support people.
We invite you to look through the topics and questions to find the answers that may be most helpful to you.
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Important Topics After a Cancer Diagnosis
How can I understand all these new cancer terms?
The National Cancer Institute has a dictionary with more than 9,000 terms related to cancer and medicine.
Where can I learn more about my cancer diagnosis?
Your care team is the best source of information. On the internet, reliable sources include Living Beyond Breast Cancer, American Cancer Society, Breastcancer.org, and the National Comprehensive Cancer Network.
If you have inflammatory breast cancer, Details, Diagnosis, and Signs, NCCN Guidelines for Patients: Inflammatory Breast Cancer, and Inflammatory Breast Cancer are all good resources.
If you have triple negative breast cancer, these resources are available for you: Triple-Negative Breast Cancer (ACS) and About Triple-Negative Breast Cancer | Breast Cancer | CDC.
I don’t have breast cancer. Where can I learn about my cancer?
Your care team is the best source of information about your cancer. Reliable sources on the internet reliable sources include: National Comprehensive Cancer Network and American Cancer Society.
What scans will I have?
Your care team is the best source of information about your scans. You can also learn more about various breast caner scans at American Cancer Society.
Where can I learn about treatment?
Treatment options may vary by the stage and by the grade of your cancer. There are recommended websites for treatment information, including: Chemo Care – Drug Information, Types of Cancer Treatment - NCI, and Managing Cancer | Cancer Treatment & Side Effects | American Cancer Society.
Who is on my care team?
Your Cancer Care Team explains the members of your care team. You can also check out: People in Health Care - NCI (cancer.gov).
How do I prepare for my appointment? What should I ask my care team?
You can also Look at Preparing for Your Oncology Visit; Questions to Ask Your Doctor When You Have Cancer and Breast Cancer: Questions to Ask Your Care Team to review common questions asked of care teams.
So much happens at my appointment. How do I remember what we discussed?Triage Cancer and Getting the Most Out of Your Doctor Appointment all offer several tips and resources to help you organize the information discussed at your appointments.
I have heard that self-advocacy is important in cancer. How do I advocate for myself?
Taking Charge of Your Care and Self-Management: Take Control of Your Health both provide helpful information. Primary care providers can often help you with understanding your options as you work with the health care system.
Where can I find cancer resources?
The National Cancer Institute has a tool that can help you find support services.
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Fertility and Family Planning
Will my cancer affect my ability to have children?
This is an important question for people who want to have children. Ask your provider if there is future risk of infertility before starting your treatment. You may be able to undergo fertility preservation before treatment starts. Learn more from these organizations: Alliance for Fertility Preservation, Save My Fertility, and Livestrong Fertility Program.
How do I pay for fertility preservation / treatment?
Insurance may or may not pay for fertility preservation. If you live in a state where fertility preservation is not required, you may be able to get coverage through an appeal process. Learn more in this quick guide and find other options for assistance.
What if I did not know about the effects of treatment on my fertility prior to beginning?
Not all cancer treatments impact fertility. Talk to your health care team about your treatment. Learn more at Having a Baby After Cancer: Pregnancy | American Cancer Society, Parenthood Options for Women - Livestrong, and Fertility and Pregnancy After Breast Cancer
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Families and Parenting — Cancer and Minor Children
What do I tell my children?
There are some resources that can help, including: Your Parent Has Cancer; Helping Children Understand Cancer; Parenting With Cancer; What's Happening to Mom; Parenting with breast cancer; and Talking with Teens About Cancer.
How do I help my children throughout treatment?
There are practical tips available from the American Cancer Society, Supporting a Child When a Parent has Cancer, How Children React, and Cancer.Net. There are also support services available for children including, but not limited to: Bright Spot Network, Ele's Place (in Michigan), and Camp Kesem National.
How do I balance cancer and parenting?
These resources can help: Parenting With Cancer and Just Diagnosed with Cancer? Your Kids will be Okay.
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Insurance, Paying for Cancer, and Living Expenses
What about insurance?
Cancer treatment can be expensive. Ask if your cancer center has a financial navigator; they should be able to help with high cancer care costs. Learn more by checking out these resources: insurance for cancer treatment and Finances-Work-Insurance.
How do I know what providers my insurance will cover?
You can get his information from your health insurance company. Learn more here: Understanding Your Insurance Coverage and Health Insurance for Cancer Patients.
Can I appeal a decision made by my insurance agency?
If you question a decision made by your insurance company, know that there is an appeals process. The Patient Advocate Foundation has case managers who can help with the appeals process.
How do I pay for cancer treatment?
Check with your care team. Some health systems have funds that can help. Managing Cancer Costs and Medical Information, Guide to Financially Navigating Breast Cancer and Paying for Cancer Treatment | Cancer Survivors | CDC provide helpful questions and tips.
I am having problems paying my bills. Is there help?
Yes. You can check out programs like United Breast Cancer Foundation and The Pink Fund. If you are in Michigan, Shades of Pink Foundation and It’s a Breast Thing may be able to help.
For people with other cancer types, check out: Cancer Financial Assistance Coalition.
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Mental Health and Psychosocial Support
How do I find social support?
Finding sources of social support is important. Friends and family may not understand the impact of cancer on your physical and mental health. Talking to someone who has been through cancer treatment may help. Ask your care team about local support groups.
What options are available for online social support groups?
In Michigan, some organizations offer online groups, like Gilda’s Club Metro Detroit, and Cancer Support Community of Greater Ann Arbor.
If you are outside of the state of Michigan, there are online options for you, as well. Check out Online Communities for Support to learn more.
If you are a young person, support groups that serve young adults specifically may be helpful. Check out the Young Survival Coalition (for breast cancer) and Resources for Young Adults With Cancer for more information.
What are other options for social support?
Several organizations offer one-on-one peer support, including the Young Survival Coalition (for breast cancer) and Imerman Angels (all ages and all cancer types). Imerman Angels will match you with a person with a similar diagnosis and age for one one-on-one support.
Other online support resources include: Little Pink Houses of Hope (for breast cancer), Cassie Hines Shoes Cancer Foundation, Casting for Recovery (for breast cancer), and Bluebird Cancer Retreats. The organization Elephants and Tea provides resources that can help young adults with cancer feel less alone.
Are there any resources available to make my daily life with cancer less overwhelming?
Yes, the organization Jasper offers a free digital app for your cancer care. Dealing with cancer is complicated. Jasper allows you to organize your schedule, track your medications and symptoms, and access cancer care coaching support — all in one place. Jasper is available at no cost to you through both a web and mobile app. Learn more about Jasper and sign up.
Cancer seems to be bringing stress into my relationship. Is that common?
Sometimes, this can happen. Learn more here: Relationships During Treatment | Livestrong.
This can be challenging. But, check out these resources: Coping with Cancer When You’re on Your Own, and Cancer Support Helpline.
I feel anxious / depressed. Is that normal?
Yes. Breast cancer can bring changes to every aspect of your life, including your body, finances, and relationships. Feelings of fear and isolation can also occur. This can take a toll on your mental health. It is okay to ask for help. The American Cancer Society provides helpful information.
- Check with your care team about mental health counselors in your area.
- If you have thoughts of hurting yourself, ask for help right away. This might mean calling your care team to ask for help, going to the Emergency Room, calling 911, or contacting the national suicide and crisis hotline at 988.
Cancer has made me think more about my spiritual self. Is that normal?
A diagnosis of cancer may make you think more about your mortality, even if your cancer can be cured. Learn more here: Spirituality in Cancer Care - NCI.
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Treatment Decisions
What is the standard of care for my type of cancer?
National Comprehensive Cancer Network (NCCN) has guidelines for patients that can be reviewed.
Should I get a second opinion about my options?
Check out these resources to learn more about second opinions: American Cancer Society, Cancer Support Community, and Cancer Care.
My doctor is telling me I have treatment options. How do I decide?
Making a choice includes factors like age, perception of future risk, and the overall treatment plan. Educate yourself and make the best decision for YOU.
I am going to have a mastectomy. What are my choices after that?
Many women choose to have breast reconstruction surgery, others do not. Learn what your options are, and then decide what is right for you. Learn more from: American Cancer Society, BreastCancer.org, and Not Putting on a Shirt.
Should I participate in a clinical trial?
There are a wide variety of clinical trials available. A clinical trial might be a good option for you. Check with your care team to find if there is one that is right for you. Learn more at: Clinical Trials Information - NCI (cancer.gov), Clinical Trials (breastcancer.org), and What You Need to Know About Clinical Trials. If you are Black/African American When We Tri(al) has helpful information.
Where can I find clinical trials?
You can search for clinical trials at ClinicalTrials.gov, Find a Clinical Trial, and Find NCI-Supported Clinical Trials – National Cancer Institute.
Will I be able to keep my hair during chemotherapy?
Using a process called scalp cooling or cooling caps has had some success with limiting hair loss. If not covered by insurance, there may be financial assistance. Ask your care team about support services and also check these other resources: Hair to Stay and Sharsheret.
Should I be physically active when I am in treatment?
Physical activity is an important part of physical and mental health. The American Cancer Society provides helpful information.
Should I change my diet?
Ask your care team if there is a nutritionist available to speak with you. Also check out these resources: American Cancer Society and National Cancer Institute.
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Cancer Under 45
I am in my (20s/30s/40s), and I do not know anyone my age with cancer. Where can I find more information about living with cancer?
You will find helpful information related to any cancer type on these webpages: Special Issues for Young Adults With Cancer and Stupid Cancer.
For breast cancer specifically, these pages may be helpful: Bring Your Brave Campaign, and Resources for Young Women with Breast Cancer.
I am in my 20s or 30s. Are there organizations for people my age?
Yes, these organizations only serve young adults: Young Survival Coalition (for breast cancer), Stupid Cancer, and The Cassie Hines Shoes Cancer Foundation.
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Side Effects
Where can I learn more about side effects from treatment?
Some good websites that discuss side effects are Chemo Care, Managing Cancer-Related Side Effects, Side Effects of Cancer Treatment | Cancer Survivors | CDC, and Chemo Experts.
Am I at risk for lymphedema? What can I do to care for myself?
Lymphedema can occur after cancer treatment. Learn more from the American Cancer Society, Centers for Disease Control and Prevention, National Cancer Institute, and BreastCancer.org.
I am losing my hair. What should I know about wigs?
Information about wigs can be found at Choosing and Wearing a Wig, Wigs: Types, Care, Costs, and Wigs for Cancer Patients. Your care team can also be a resource for information about wigs.
I am experiencing changes in my sexual relationship. Are there resources to help?
These changes can happen. Women can learn more at: National Cancer Institute, American Cancer Society, and Komen. Men can learn more at: American Cancer Society and Livestrong.
I have heard that early menopause may occur from cancer treatment. Am I at risk? What should I expect?
Dependent upon age, cancer type, and treatment, some women do experience early menopause. Learn more here: LBBC, Young Survivor Coalition, and BreastCancer.org.
I am having some side effects from my cancer treatment. Are there resources for me?
It is important to report all side effects to your care team. They may be able to assist. These resources may also be helpful:
- Appetite loss – Appetite Loss and Cancer Treatment and Appetite Loss;
- Constipation – Constipation and Cancer Treatment and Constipation;
- Diarrhea – Diarrhea and Cancer Treatment and Dehydration; and
- Nausea and vomiting – Nausea and Vomiting and Treatment and Nausea and Vomiting.
I am struggling with pain. Who can help?
Sometimes, pain can be treated by your oncologist. At other times, a referral to Palliative Care may be right for you. Managing Pain After a Cancer Diagnosis may also be a helpful tool.
I don't feel like myself. Are there programs that can help me feel better about how I look?
Cancer can bring changes to how you feel about yourself. Learn more at: Self-Image, Sexuality, and Cancer, Self-Image and Cancer, and Body Image. The Look Good Feel Better program may be helpful.
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Careers
How will my cancer diagnosis impact my work? Should I take time off?
Breast cancer may require time off work. Cancer and Careers, Triage Cancer, and Young Survival Coalition can answer many of your questions.
Can I take time off and keep my job?
Triage Cancer may have resources that can help, such as:
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After Treatment Ends — Post-Treatment Survivorship
Shouldn't I feel happy about ending my treatment? Why am I so scared?
Life After Cancer and Questions to Ask Your Doctor When You Have Finished Treatment provides helpful information.
What should I do to stay healthy now that my treatment has ended?
These resources provide suggestions: Living Well After Cancer Treatment and Facing Forward. Many YMCA organizations offer the Livestrong at the YMCA Program, a free or low-cost program with for cancer survivors.
Can I prevent a cancer recurrence?
Check out this American Cancer Society article.
I have heard that hair can be different after my cancer treatment. Is that true?
This can happen. You can learn more at Chemo Curls: How Chemotherapy Affects Your Hair and Hair Loss.
I lost my boyfriend / girlfriend / partner / spouse during my treatment. How do I move on?
Sometimes, relationships change as a result of cancer. Learn more at: Relationships.
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Other Important Topics
Are my family members at risk for cancer?
Some cancers come from genetic changes, and others do not. Ask your care team if genetic testing is recommended for you, and check out these resources: American Cancer Society, FORCE, Michigan Genomics Program, Sharsheret, and National Cancer Institute.
How can I ask for help?
The following resource may be of interest: Breastcancer.org.
My family and friends have asked how they can help. What should I suggest?
The following resources may be helpful: Cancer Support Community, and Lend Them a Helping Hand.
How do I get involved in advocating for people with cancer?
Cancer advocacy groups address a variety of issues of interest to patients. Check out these organizations: American Cancer Society Cancer Action Network and METAvivor - Metastatic Breast Cancer Awareness, Research and Support.