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Metastatic Cancer Frequently Asked Questions
Metastatic cancer is a term that describes when cancer cells move to other parts of the body and into normal tissue. This is referred to as stage IV (four) cancer. The medical, emotional and financial challenges for people with metastatic breast cancer are great.
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Where can I learn more about metastatic cancer?
There are many reliable sources of information on metastatic cancer, including National Cancer Institute, Metastatic Breast Cancer Alliance, Cancer.Net, BreastCancer.org, LIVESTRONG, Komen, Metastatic Breast Cancer Network, and the Young Survival Coalition.
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What resources are available for brain metastasis?
MBCBrainmets.org provides resources for individuals living with brain metastasis that provides access to cutting-edge research, peer support, and tailored assistance.
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I've been told I will be in treatment for the rest of my life? How do I cope with that?
You should ask yourself questions like, “What is quality of life for me?” and “What goals do I have?” Make sure you care team knows what is important to you. Check out BreastCancer.org and METAvivor for more information.
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What resources are available for single parents with metastatic breast cancer?
The organization Infinite Strength specializes in helping single mothers with metastatic breast cancer. They provide human needs grants and offer emotional support opportunities.
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What roles do clinical trials play in advanced cancer?
Enrollment in a clinical trial is common for people with advanced cancer. Learn more at: FORCE, Breast Cancer Trials, and BreastCancer.org.
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What is advance care planning and why should I do it?
Advance care planning is a process of letting your loved ones and care team know what you want if you are unable to make your own decisions. Cancer.net, Five Wishes, and MDHHS have materials that can help with this process.
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How do I provide support to my young children if I am gone?
Many people chose to leave birthday cards or video recordings to help keep their memory alive. Cancer.Net shares information on how to help grieving children and teenagers.
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What is the difference between palliative care and hospice?
Palliative care is care that is focused on symptom management. It can be combined with active treatment working towards a cure of the cancer. The National Cancer Institute provides additional information. Finding a Palliative Care Program can help you find a provider.
Hospice care is used when a cure is not likely or when people are in the last months of life. It cannot be combined with treatment intended to cure cancer. It also provides symptom management to relieve cancer care. To learn more about hospice care and when it is right for you check out: What Is Hospice Care?, Choices for Care with Advanced Cancer, and Hospice Care For Cancer Patients.
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What resources are available to me once my cancer is no longer responding to treatment?
You may find these resources helpful: End of Life Planning, Caring for Myself as My Illness Advances (cancercare.org), End-of-Life Care, Planning Ahead for End of Life, Nearing the End of Life, and Completing Your Life.