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Community Partners

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Sickle Cell Disease Association of America- Michigan Chapter

The Sickle Cell Disease Association of America, Michigan Chapter (SCDAA-MI) is MDHHS' designated medical management center for hemoglobinopathies. SCDAA-MI provides confirmatory diagnostic testing, genetic counseling, and social work services for individuals with SCD through a network of outreach sites.

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Michigan Sickle Cell Data Collection

The Michigan Sickle Cell Data Collection team is comprised of staff from the Susan B. Meister Child Health Evaluation and Research (CHEAR) Center at the University of Michigan and the Michigan Department of Health & Human Services (MDHHS). CHEAR staff are responsible for data acquisition, data linkage, and analysis; MDHHS staff are responsible for the multidisciplinary team, communications plan, and providing data. Other stakeholder groups include Students & Trainees and Funders & Partners.

University of Michigan logo

University of Michigan

The Susan B. Meister Child Health Evaluation and Research (CHEAR) Center at the University of Michigan 

CHEAR is one of the largest health services research centers that focuses on children. Their work is multidisciplinary, encompassing health services research, epidemiology, health policy, general pediatrics, and pediatric subspecialties.

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Centers for Disease Control and Prevention

CDC helps develop health guidance materials based on the American Society of Hematology’s Clinical Practice Guidelines on Sickle Cell Disease. These materials include common complications of sickle cell disease and steps to take for better health.

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Michigan Department of Education

MDE helped distribute a Supporting Students with Sickle Cell Disease Standard Care toolkit designed to guide the school nurse or other medical professionals in providing the most complete training according to standards.