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Resources For Patients

Resources For Patients

There are resources available that can help individuals with Long COVID effectively navigate their condition. This includes guidance on preparing for healthcare appointments and learning about different coping strategies and symptom management. Being able to access mental health resources and hearing from the experiences of others can provide individuals with valuable support to feel empowered in their recovery journey.
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    • The CDC’s healthcare appointment checklist for Long COVID outlines essential steps for patients to take before, during and after their medical appointment. The intent of this checklist is to help patients with Long COVID and caregivers get the most out of appointments with healthcare providers.
      Healthcare Appointment Checklist for Long COVID | COVID-19 (pdf)
    • The University of Michigan created a resource for individuals with post-acute sequelae of severe acute respiratory syndrome coronavirus 2 (SARS‑CoV‑2) infection as a guide that you can use before, during and after your doctor’s visits. It includes questions to ask and advice on discussing symptoms to ensure patients get the care they need.
      Talking to Your Doctor | PASC Guide
    • This CDC page contains information on how Long COVID can impact your daily life, and how you can overcome the challenges of living with this condition. It shares information on managing symptoms and finding support.
      Living with Long COVID
    • This University of Michigan guide focuses on self-care strategies for individuals dealing with Long COVID. It includes tips for managing symptoms and improving overall well-being. The goal is to provide modules for individuals to take control of their health.
      Self-Care | PASC Guide
    • Learning to live with grief and loss is a painful process—and while it differs from one individual to another, it helps us to understand the normal feelings we all experience.
    • In 2020, a behavioral health partnership led by MDHHS established the Stay Well program to offer support to Michiganders in response to the COVID-19 pandemic. The program provided coping resources, including webinars, toolkits, support groups and educational materials. Although live Stay Well programming ended in 2023, the mental health resources can still be helpful for people with Long COVID.

      In this workshop series, Stay Well outreach specialist Zeinab Moussa discusses the emotions experienced by those who are grieving and offers healthy ways to cope. 

    coping with grief and loss

    Session 1: Shock and Denial

    Session 2: Anger

    Session 3: Depression

    Session 4: Acceptance and Healing

    Download the accompanying Coping with Grief and Loss Workbook

    • These audio recordings by Stay Well outreach specialist Chardae Korhonen provide guidance for building moments of mindfulness into your day.

    maintain calm throughout the day

    1.  Begin the day with intention
    2.  Pause for a midday reset
    3.  End the day with gratitude

    cultivating joy

    Episode 1: Positive Psychology
    How can we begin to see the world with more optimism?

    Episode 2: It's OK to not be OK (for now!)
    Not feeling great? It may be pandemic flux syndrome.

    Episode 3:  Joyful Activities
    Explore activities that help to promote everyday joy.

    Episode 4: How do we heal?
    We can't change COVID or our current situation, but we can find our way to healing.

    Episode 5: Can boundaries help create joy?
    Creating and maintaining boundaries can make room for joy.

    Episode 6: Gratitude and Joy
    The amazing relationship between grateful living and joyful feelings.

    After viewing, download Points for Reflection and Discussion, useful for classroom/group discussions or individual reflection.

     

    • The Veterans Crisis Line is a 24-hour, confidential resource that connects veterans with a trained responder. The service is available to all veterans and those who support them, even if they are not registered with the VA or enrolled in VA healthcare. 

      If you are a veteran, consider using the Veterans Crisis Line--Call 988, then press “1.” You can also text 838255 or chat online. 
    • The Michigan Peer Warmline can provide a listening ear and support for individuals affected by Long COVID. It offers peer assistance through specialists with mental health experience and a safe space to share experiences and feelings. 

      The Peer Support Warmline, 888-733-7753, Hours: 10 a.m. – 2 a.m. ET, 7 days a week.
    • This link will take you to a list of community mental health providers across the state of Michigan.  It provides networks with mental health services and programs to connect individuals with local assistance.

      Michigan Resouces
    • FindTreatment is a resource focused on mental health support for a variety of mental health issues. They provide a confidential and anonymous resource for locating treatment facilities for mental health help in the United States and its territories.

      Search For Treatment - FindTreatment.gov

  • Hearing stories from individuals affected by Post-Acute Sequelae of COVID-19 (PASC) can foster understanding and community support. The University of Michigan provides a resource with videos which highlight the voices of clinicians and the personal experiences and challenges faced by patients.

    PASC Stories | PASC Guide